Robbie spent the morning at MD Anderson. Although he didn’t have the major scans today, they did xray his lungs. The xray is showing slightly more fluid in his lungs and more cancer activity in a couple areas than the most recent xray done in the hospital. X-rays are not as accurate, so I’m praying the next scans will show improvement.
Today an older couple started talking to him and then they said…..We will add you to our prayer list. Robbie said…you are going to have a long prayer list if you talk with many people here today. Ha
Then we went to the Houston Zoo. He got to go behind the scenes to feed Curly again. They are so good to him.
Now, we are back to MD Anderson and he has been admitted to their hospital for chemo.
We really appreciate the staff at the Natural Encounters building for always being so kind to Robbie. When they found out he was having a rough week, they invited him to feed and spend time with Curly the sloth. ❤️
We are so thankful for friends and family. We are all having a hard time handling the latest news. Tomorrow we will be at MD Anderson all day for tests, chemo, and to see Dr Ratan. We are waiting on approval from insurance for the new chemo. Then Robbie will have chemo everyday for a week for round one.
I took off the rest of this week. My new school has been so kind and very supportive. Ruth should be here tomorrow night and Lynn will come when she is able.
Robbie a couple months ago at the Tulsa Zoo.
Robbie had a wonderful week in Tulsa, Oklahoma. He got to spend time with his friends and his sisters.
We are very grateful to the Tulsa Zoo for allowing him to have a special day there with multiple behind the scenes tours with various animals including their sloth. Something he won’t forget. I’m not able to post the adorable pictures because they aren’t tours offered to the public. Ruth arranged a wonderful day for him. The zoo also allowed Ruth to use a golf cart to take him around the zoo and they gave Robbie VIP treatment at the annual zoo event for donors.
Robbie and Ruth
When I first saw Robbie after being apart for a few days, I thought…why is he limping… until my brain switched on and cancer filled the space again. He looked so much like himself again and doing typical things that for a brief few seconds life was almost normal. Dr appointments start back up tomorrow.
Jim and I got back to Houston last night. Lynn and Robbie will arrive sometime today.
Robbie and Lynn
Kolache Shoppe in Houston
We started the day at the Kolache Shoppe in Houston. Robbie loves going there and often gets the sausage, cheese, and jalapeño pepper Kolache.
Next a full day of tests at MD Anderson. He had bloodwork twice because the first person missed a few things. Also tests on his heart function.
Then we went for a brief zoo trip and saw the adorable red panda and a few other animals. The zoo keepers for the Sloth were just leaving, so we missed seeing Curly today.
Robbie’s bloodwork is too low for treatment today.
Since he couldn’t have chemo, we went to the Houston Zoo. Curly had a few tours today, so when they got done, they let Robbie visit Curly. While we waited, we visited the gift shop and Robbie got a cute red panda. The red panda is another favorite that we usually visit when we are at the zoo. He hasn’t had a behind the scenes tour yet, but he likes seeing them.
We started the day at the Kolache Shoppe for Robbie’s favorite sausage, egg, cheese, and jalapeño in a bun. It is our favorite Kolache place in Houston. It is on Richmond near Weslayan Street. Robbie’s grandpa Mudroch used to make kolaches every year at Christmas. We learned about the bakery when we toured the Czech Museum in Houston.
Next Robbie had bloodwork for the clinical study. He told me they took multiple vials today. Some of the vials are being used for research.
We had extra time between appointments, so we went on a quick trip to the zoo. We ran into Sydney, one of the sweet zookeepers, and she let Robbie feed Curly a couple grapes. This was the highlight of Robbie’s day! Curly even climbed out onto a branch to be near Robbie and the grapes.
Then back to MDA to see his main doctor. Robbie is much better, but still gets tired easily. The side effects of the drugs are starting to wear off . We are so thankful he is doing better. It is scary when you don’t know how long the side effects are going to last or if anything is permanent. We are also thankful for the caring staff at the Sarcoma Center that are all watching out for Robbie.
It was a very disappointing day. Robbie was supposed to start the clinical trial today. He had bloodwork and then we waited 3 hours to find out that treatment had been cancelled today due to low blood counts. We don’t know why his white blood count is so low today. He was given a shot and will receive another shot on Sunday to help boost his white blood count. Then hopefully start the clinical trial next Monday. Robbie was upset and worried to hear this. We hate to delay treatment.
Then Google called and decided they want him to move to California instead of working remotely. Of course…. since he is still fighting cancer, he can’t move right now. Talk about another HUGE disappointment. I wanted to call them personally, but my children told me I wasn’t allowed to call Google and explain why this job is important right now during Robbie’s treatment and cry on the phone.
Robbie wanted to go to the zoo after his rough day. The sloth zoo keeper allowed Robbie in the back with Curly to feed him and talk to him. Curly really likes Robbie and kept looking at him. So cute and so sweet! We love the people at the Houston Zoo. Ruth was with us, so she got to see Curly and feed him too. She changed her flight to leave on Saturday instead of Tuesday, since we are such a mess today.
He received some cards in the mail today from Navico, which he was very excited about! They are so good to him! He also got a cute sloth shirt from a friend and some cards from the Sunshine Snail Mail. Keep the cards coming, you are really helping him.
Thank you for all your support.
Our friends drove down from Iowa to see us. Robbie and I really enjoyed the last couple days being able to see them. I’m so thankful they came down and grateful they were willing to drive so far. We became friends when our boys were little. It really lifted our spirits, after a very rough week. ❤