Tears 2/8/19

So many tears and prayers. It doesn’t seem possible that our sweet boy is so full of cancer. His Dr advises that he no longer travel out of state. Robbie is asking to visit Curly the Sloth at the zoo, so I will take him as soon as he recovers from his lung procedure. He is very tired from a day of tests and procedures yesterday. He had more scans today.

I am going to take a leave of absence from my job. I teach K-5 children with autism. I work with wonderful people and I am going to really miss them while I am out. I am thankful to work with such a great group.

My sister Terry is here and so is Lynn. Ruth is coming in a week.

Robbie and his Sloth 1/24/19

Robbie woke up long enough for a picture tonight. He continues to sleep a lot.

I fell asleep in my chair tonight. Wish I could sleep better at night, because I am tired all the time.

We are in a storm that keeps growing this year. So many things are out of my control.

Keep praying ❤

Pictures with Sloths 1/5/19

Robbie texted me today while I was out running errands. Mom…Here is a picture for the blog. Robbie with his 3 largest sloths. Love him so much.

He continues to be very weak, but is awake more and is complaining less of his back. He is breathing heavily when he walks, which frustrates him because there is so much he would like to do.

Tomorrow morning he has scans of his chest and bloodwork. Why they scheduled him at 6:25AM, I have no idea. We thought about getting a hotel near Anderson, but decided we will just get up early. We live 45-60 minutes away from the med center.

Better Day 12/30/18

Robbie with his new sloth today. He is having a much better day. His rash has really faded and he was feeling better today. He has been very weak and sleeping almost around the clock, back pain, and just feeling very off. He has also been coughing a lot due to the fluid in his lungs. We have been very worried. The new chemo drug is very harsh and has really made him sick and on top of that, he also had some kind of infection. His body has a hard time fighting any infection, which makes it extra scary when he is sick.

Home! 12/26/18

Leaving MDA

Robbie is home. His Dr said they normally would keep him longer because of his fever, but with it being Christmas week, he decided to send him home. If he isn’t better by Friday, he might have to come back into the hospital. He has multiple meds to take between his chemo meds and antibiotics.

We are thankful he is home. We have family pictures scheduled for tomorrow.

Back in the Hospital 12/24/18

We brought Robbie to the ER at MD Anderson this morning and they have admitted him. He has a fever and low phosphorus. He is being treated with IV antibiotics. They ran blood tests and took a lung X-ray. They will decide tomorrow if he needs to stay longer or can continue with treatment at home.

I have family pictures booked later this week, so hopefully that will still work out while everyone is home.

Happy Holidays 12/23/18

Robbie opening a new sloth

Playing Uno

Aunt Peggy

Jim

We celebrated Christmas tonight. Robbie received a couple new sloths and an electric blanket. Jim’s sister Peggy is visiting from Wisconsin. Robbie has been under the weather today. The new chemo drug makes him very tired and upsets his stomach.