I took Robbie to Houston’s Natural Science Museum and Butterfly Center today. His friend is here for a few days. They went to the University of Tulsa together. The boys had fun exploring the museum. We noticed a giant sloth in the dinosaur area today, that we have missed in all our trips. He also had fun taking pictures of butterflies. We had planned a quick trip to the zoo too, but Robbie was tired and it is so hot out today, that I really didn’t want to go either.
The end of next week he has his next set of scans. I’m glad we kept busy today. Yesterday I had too much time to think about it, which wasn’t a very productive idea.
Ruth’s friend Blake made this awesome Illustration for Robbie. It is a picture of Robbie with his leg brace and sloth as an anime character. Blake did a great job and Robbie really likes the picture! Along with his love of sloths, he enjoys watching anime.
Lynn and Robbie went to the same tea place as yesterday and used their computers along with having tea. Next they had lunch at Pho Saigon. Best part of lunch was finding the soursop fruit drink like they had in Costa Rica. The siblings have had a fun week together.
Today after Robbie had a bloodwork appointment, Lynn took him to Torchys Tacos. Robbie really likes spicy food since he has gone through chemo.
He is up to three chemo pills a day and so far minimal side effects. Pazopanib (Votrient) is currently in clinical trials for osteosarcoma, but he isn’t in one of the clinical trials. This is a targeted chemo drug that can affect a tumor’s ability to make new blood vessels. You can Google it along with osteosarcoma to find out more information.
Robbie’s sloth waiting for him to come back from bloodwork
I took Robbie to MD Anderson yesterday for bloodwork and to see Dr Ratan. What Robbie thought were bug bites are actually blisters caused by the chemo he is taking. So far only a few, but this can become a problem for some people. His blood pressure is up, which is normally very low….another side effect. His bloodwork so far is looking okay except his platelets have started a slow decline. We doubled his chemo drug and so far the only additional side effect is being tired. He will have scans the end of July to see if the new drug is working. Keep praying for him.
He received a couple cute birthday cards in the mail yesterday, which he enjoyed. We also visited the Museum of Natural Science after his doctor appointments. He didn’t last too long because he was so tired, but he had fun walking around by the dinosaurs. The museum was setting up tables and food for a big event. Robbie said he wishes he could rent the museum and have a party. I told him sorry, but that isn’t in the Birthday budget.
Robbie’s bloodwork is too low for treatment today.
Since he couldn’t have chemo, we went to the Houston Zoo. Curly had a few tours today, so when they got done, they let Robbie visit Curly. While we waited, we visited the gift shop and Robbie got a cute red panda. The red panda is another favorite that we usually visit when we are at the zoo. He hasn’t had a behind the scenes tour yet, but he likes seeing them.