Robbie texted me today while I was out running errands. Mom…Here is a picture for the blog. Robbie with his 3 largest sloths. Love him so much.
He continues to be very weak, but is awake more and is complaining less of his back. He is breathing heavily when he walks, which frustrates him because there is so much he would like to do.
Tomorrow morning he has scans of his chest and bloodwork. Why they scheduled him at 6:25AM, I have no idea. We thought about getting a hotel near Anderson, but decided we will just get up early. We live 45-60 minutes away from the med center.
Robbie with his new sloth today. He is having a much better day. His rash has really faded and he was feeling better today. He has been very weak and sleeping almost around the clock, back pain, and just feeling very off. He has also been coughing a lot due to the fluid in his lungs. We have been very worried. The new chemo drug is very harsh and has really made him sick and on top of that, he also had some kind of infection. His body has a hard time fighting any infection, which makes it extra scary when he is sick.
Robbie is home. His Dr said they normally would keep him longer because of his fever, but with it being Christmas week, he decided to send him home. If he isn’t better by Friday, he might have to come back into the hospital. He has multiple meds to take between his chemo meds and antibiotics.
We are thankful he is home. We have family pictures scheduled for tomorrow.
We brought Robbie to the ER at MD Anderson this morning and they have admitted him. He has a fever and low phosphorus. He is being treated with IV antibiotics. They ran blood tests and took a lung X-ray. They will decide tomorrow if he needs to stay longer or can continue with treatment at home.
I have family pictures booked later this week, so hopefully that will still work out while everyone is home.
We celebrated Christmas tonight. Robbie received a couple new sloths and an electric blanket. Jim’s sister Peggy is visiting from Wisconsin. Robbie has been under the weather today. The new chemo drug makes him very tired and upsets his stomach.
Jim and Robbie went on their own to their appointments today. Jim can start his medicine now and his glands should start to have less swelling after a couple weeks.
Robbie is still waiting for his medicine and the drugs for his side effects are at Anderson, but the guys forgot to pick them up again. His scans show his tumors continue to grow in his lungs. I hope his new medicine comes soon! Nothing new on his leg. He saw his surgeon today for a follow up appointment. One of the nurses gave him a new adorable sloth. They are so good to him.
I have a new great niece. She was born over the weekend to my nephew’s family that live near us. I can’t wait to hold her. I have a cold, so I have to wait.
We put up an extra tree for Robbie’s sloths this year. Robbie and Ruth plan to add to it later this week when she visits. Robbie loved the sloth Christmas tree at the Aquarium, so we decided to make our own.
We are still trying to process all the information from yesterday. I have started recording all the major Dr visits, so we can listen to them again. Even his doctor was surprised how good he looks compared to what his scans are saying. It is so heartbreaking every time we get bad news. I was at work today doing the best I could, but my heart was at home with Robbie.
We took Robbie to see the sloths at the Dallas World Aquarium today. The sloth is from the Sloth Sanctuary in Costa Rica. Robbie loved visiting the sloth. We were first in line, so he got to the sloth ahead of the crowd. I am so glad we took the time to take him. He loved the sloth Christmas tree in the gift shop, but was too tired to shop this time. He rested on our drive to Houston and continues to rest now that we are home.
I am very thankful we were able to take him on this trip. He is worried about his tests tomorrow, doctor appointments on Monday, and his next chemo treatment this week.