Immunotherapy 4/24/18

Here is a picture of Robbie having Immunotherapy today at MD Anderson. He had a very sweet nurse. Robbie slept most of the afternoon.

We got a call from Anderson tonight and they feel it is critical for us to bring Robbie in tomorrow due to his blood counts for his thyroid from the immunotherapy. It also means changing his schedule for IV fluids. We are all exhausted. Robbie amazes me with how he never complains.

Lynn is here for a couple weeks. I’m so thankful she can come and help us out.

We appreciate everyone’s support.

Biopsy is Done 3/21/18

Biopsy Today

Robbie had a biopsy on one of the tumors in his lung today. He did well. He was asleep most of the day. They finally let us leave the hospital at 6:00 tonight. Lynn and Josh spent the day with us, which really helped!

We have to go back tomorrow for tests on his heart. I’m not sure if there was a problem with the first heart test or if they didn’t do the test correctly.

Cards and packages ❤

Thank you to everyone that has been sending cards and packages. You are really helping him through a rough time. We are so thankful for your kindness!

Another Zoo Trip, Dr Appointments, and More 3/6/18

Lynn took Robbie to the zoo today. They had fun spending time together. He has missed our frequent trips.

Robbie’s Uncle Tom and Aunt Paula are visiting from Wisconsin. It is great to see them.

Tomorrow is the dreaded testing day and Thursday we get results. This is never easy!

Robbie had a few interviews this week. All very exciting for him and amazing with all he has going on with his health. I reminded him that he can go on disability, but he really hopes to work while he is able. This makes the upcoming tests even harder. Please pray for healing of his lungs and pray for the possible opportunities.

Thank you for all your support.

Lung Doctor Updates 1/9/18

In this picture the nurse practitioner is pointing to the area of his lung that has fluid. They will watch his lung and said it is not unusual after lung surgery.

First the Good news... Robbie is cleared to travel next week to Costa Rica with few limitations. This is something we worried we wouldn’t be able to pull off and we are very grateful to everyone that helped with his Bucket List.

The lung doctor was able to get clear margins around the tumors he removed…meaning he removed all the cancer in the lung that he found. All great news! His doctor also told Robbie that he thinks of him every time he sees or hears about sloths. So sweet!

Bad news: Unlike his leg tumor that was 98% necrosis (dead), his left lung tumors were only 5% necrosis or 95% viability (living).

What I interpret from this report (which is like reading Greek) is the chemo had limited impact on the cancer. They are holding off surgery on the right lung for now. The dr said it is because the tumors are smaller and he doesn’t want to miss any when he does surgery.

We will see Dr Ratan after the trip. He will do additional testing and he is great at explaining everything. As my friend would say…”Just keep swimming”…

Watching Jaguar Cubs Play and Meeting Interesting People 12/4/17

Robbie and I spent time at the zoo watching the adorable jaguar cubs play with their mother today. It was like watching large kittens play. Robbie had fun using his new camera lens taking pictures. It was overcast, so the zoo was pretty quiet. We had one person that stayed by us the entire time. She said she is a cancer survivor and went to MD Anderson. She said she could feel his cancer battle and just wanted to hug him, but decided she shouldn’t since she doesn’t know us. Instead she stayed by us.

Then we met someone else today. When we were getting into our car, (which isn’t by the regular parking lot, since we park in the handicapped area), so you have to go out of your way to walk to us. Anyway, someone knocked on Robbie’s window and wanted to talk to us. She was with two small children and she asked if she could pray for Robbie. She prayed for a long time demanding that the evil cancer would leave his body and he would be healed. I’m all for praying…..I’m not sure what caused her to seek us out. And her prayers were very dramatic. She was still talking to us and waving as she walked away.