New Shirt 1/9/19

Robbie was given a new shirt from Lynn’s friend. “I run better than the government”…

He still has a fever today, but it isn’t as high and he feels better today. Tomorrow he starts the next round of chemo drugs. I hope this round isn’t as hard on him.

MD Anderson Updates: Terminal Cancer 1/7/19

Waiting for his appointment

The current chemo drug is slowing the cancer down, but also causes multiple side effects. It is all the Dr has left to try, so as long as it helps and doesn’t make him too sick, he will continue.

Robbie continues to have cancer in his lungs, along with a new tiny tumor on his heart and liver. It all looks about the same as two weeks ago when he was in the ER, so his Dr thinks the new drug is helping.

Dr Ratan told him today that his cancer is terminal. He has mentioned this possibly to Jim and I, but this is the first time Robbie has heard this. It is devastating news. We are so sad. It is so frightening for him and all of us.

Robbie has beat the odds so many times. Keep praying for all of us. ❤

Tests and Butterflies 1/6/19

Look…no traffic going into Houston!

Butterfly Center

We left our house at 5:30AM for Robbie’s tests at Anderson. When we arrived, the line was out into the hallway and the person checking people in was painfully slow. After 45 minutes, Robbie finally got to check in. She was like the sloth in Zootopia.

After his tests, he was exhausted, but since he has been talking about the Butterfly Center, I talked him into going. My thought is that you can feel bad at home or while watching butterflies. He was too weak to use his camera and too weak to stay very long. I went to their guest services and a nice young man got a wheelchair for us and wheeled Robbie to our car in the parking garage. He also was a sweet tour guide as he walked us through part of the museum on our way out. I was mad at myself for thinking this was a good plan. He slept all the way home and looks better this afternoon.

Pray for his strength and for good test results.

Pictures with Sloths 1/5/19

Robbie texted me today while I was out running errands. Mom…Here is a picture for the blog. Robbie with his 3 largest sloths. Love him so much.

He continues to be very weak, but is awake more and is complaining less of his back. He is breathing heavily when he walks, which frustrates him because there is so much he would like to do.

Tomorrow morning he has scans of his chest and bloodwork. Why they scheduled him at 6:25AM, I have no idea. We thought about getting a hotel near Anderson, but decided we will just get up early. We live 45-60 minutes away from the med center.

The Girls left for Tulsa 12/29/18

Lynn & Ruth are off to Tulsa

Lynn, Robbie, & Ruth

Ruth and Lynn left for Tulsa. They took a picture with Robbie before they left. I am thankful they were able to spend a week with us.

Robbie’s face has cleared up, but he is still covered in a rash and sleeping a lot. Today he will take his chemo drugs again to see if the rash gets worse or the rash is something else. We were at the ER until 7:30 last night and then an hour drive to Katy.

Some of his bloodwork was off yesterday. He had low phosphorus again, so they gave him an IV supplement and high lactic acid. We found out that is the reason for flooding him with IV fluids and doing an EKG. By the time we left, his lactic acid levels had gone down. They told us he would have been hospitalized if his levels had stayed high. More questions for his main Dr next time.

Home! 12/26/18

Leaving MDA

Robbie is home. His Dr said they normally would keep him longer because of his fever, but with it being Christmas week, he decided to send him home. If he isn’t better by Friday, he might have to come back into the hospital. He has multiple meds to take between his chemo meds and antibiotics.

We are thankful he is home. We have family pictures scheduled for tomorrow.

Back in the Hospital 12/24/18

We brought Robbie to the ER at MD Anderson this morning and they have admitted him. He has a fever and low phosphorus. He is being treated with IV antibiotics. They ran blood tests and took a lung X-ray. They will decide tomorrow if he needs to stay longer or can continue with treatment at home.

I have family pictures booked later this week, so hopefully that will still work out while everyone is home.

Hospital Bed is Set Up 12/16/18

With the help of our nephew Brian, we traded Robbie’s beds today and gave him his hospital bed back. This bed is adjustable, so he will hopefully be able to sleep better. He feels better when he is more upright. He has more pain when he lays flat.

The morphine is helping his pain and he is much more comfortable today. It has been a rough few days! I will call his Dr tomorrow and see what we should do next.