We escaped the room and Robbie just ordered a gyro from uber eats and is happy to have something not prepared in the hospital. It was a bit exhausting by the time the food came and we walked back to his room.
He got a couple more cards which he enjoys. Thank you!
Praying he can come home soon. We aren’t able to spend the night today. We try to be here all the time with him. Lynn is driving back to Tulsa today. We are going to miss the girls helping us.
The interesting things you can see wondering the halls at MDA. The hall of IV carts. Robbie was still not released from the hospital. He doesn’t feel good and he is understandably unhappy. He is breathing heavily when he walks. We went exploring to a different area of the hospital because he has to have shots in his stomach if he doesn’t go walking to avoid blood clots. He is running a fever.
Playing “Cards Against Humanity” with Lynn, nephew Brian, and Robbie this afternoon . It is a hilarious adult card game.
Robbie got some cute cards in the mail this week. He continues to have effects from the latest chemo treatments. His blood counts and kidneys need to improve before he can go home. He is running a fever today, so that could mean the blood counts are dropping more, which is typical after strong chemo. Current estimate is Monday, but we hope he can come home sooner. He is tired of being in the hospital! Keep praying that he can go home soon.
Jim stayed with him last night and Lynn was there during the day. I’m at the hospital tonight. Robbie’s sloth army is here too.
We are so thankful for friends and family. We are all having a hard time handling the latest news. Tomorrow we will be at MD Anderson all day for tests, chemo, and to see Dr Ratan. We are waiting on approval from insurance for the new chemo. Then Robbie will have chemo everyday for a week for round one.
I took off the rest of this week. My new school has been so kind and very supportive. Ruth should be here tomorrow night and Lynn will come when she is able.
We got sad news today. The CT scan of Robbie’s lungs last night show his cancer has taken off and is probably the cause of the pneumonia and breathing problems. The clinical trial and lung surgery have been canceled. He will start aggressive chemo treatments on Thursday. This chemo is known to lower blood counts, which often include ER trips and transfusions.
Ruth and one of her friends are driving down Thursday. Lynn is on a business trip.
Robbie really wanted to go to the Butterfly Center and the Kolache Shoppe this morning. I promised earlier this week that I would take him.
He enjoyed the breakfast, but only lasted a few minutes by the butterflies. He was glad to escape the house. Walking back to the car made him shaky and short of breath. Hopefully he will feel better soon. He is getting tired of being sick.
Here is a picture of the kids playing in the snow when we lived in Iowa. Robbie spent most of today sleeping. He has been running a fever and doesn’t feel very good. His side stopped hurting, so that is good. Any pain that he has, we worry about the cancer spreading. The week of treatment is hard on Robbie and all of us. Thankfully, he always amazes us how he bounces back. I noticed today that he is really looking thin even for Robbie. He has been steadily loosing weight, since he started the immunotherapy.
Just like last round, Robbie has a fever, rash, chills, tired, and miserable.
I interviewed in Katy, TX today and they called later and offered me a job. I will be teaching special education in the fall. We went out to eat to celebrate. Robbie wanted to come along, but we should have encouraged him to stay home and rest. I hate seeing him so sick again.