Sloth Mug 1/12/19

Robbie received an adorable sloth mug in the mail today from a sweet friend we met attending a Marfan Syndrome conference a few years ago. This summer the conference is in Houston. Robbie has gone 24 hours without a fever for the first time in about 2 or 3 weeks. He continues to cough off…

New Shirt 1/9/19

Robbie was given a new shirt from Lynn’s friend. “I run better than the government”… He still has a fever today, but it isn’t as high and he feels better today. Tomorrow he starts the next round of chemo drugs. I hope this round isn’t as hard on him.

Fever and Sister Visit 1/9/19

Lynn flew in Tuesday to hangout with Robbie for a few days. He is running a fever and sleeping a lot. It was difficult to return to teaching this week. Thankfully Lynn is here for a few days. Thank you for all the kind messages. We are grateful for all the prayers and support. ❤

Still Stuck in The Hospital 9/9/18

We escaped the room and Robbie just ordered a gyro from uber eats and is happy to have something not prepared in the hospital. It was a bit exhausting by the time the food came and we walked back to his room. He got a couple more cards which he enjoys. Thank you! Praying he…

Saturday at MDA 9/8/18

The interesting things you can see wondering the halls at MDA. The hall of IV carts. Robbie was still not released from the hospital. He doesn’t feel good and he is understandably unhappy. He is breathing heavily when he walks. We went exploring to a different area of the hospital because he has to have…

Hospital Day 8

Robbie got some cute cards in the mail this week. He continues to have effects from the latest chemo treatments. His blood counts and kidneys need to improve before he can go home. He is running a fever today, so that could mean the blood counts are dropping more, which is typical after strong chemo….

Thankful for Friends and Family 8/29/18

We are so thankful for friends and family. We are all having a hard time handling the latest news. Tomorrow we will be at MD Anderson all day for tests, chemo, and to see Dr Ratan. We are waiting on approval from insurance for the new chemo. Then Robbie will have chemo everyday for a…

MD Anderson Updates 8/28/18

We got sad news today. The CT scan of Robbie’s lungs last night show his cancer has taken off and is probably the cause of the pneumonia and breathing problems. The clinical trial and lung surgery have been canceled. He will start aggressive chemo treatments on Thursday. This chemo is known to lower blood counts,…

Pneumonia Continues 8/26/18

Robbie continues to be short of breath, coughing, and low grade fever. I sent a message to MD Anderson, so they will see it in the morning and let us know if there is anything else we can do. Jim is running a fever tonight, so I hope he isn’t getting sick.

Butterfly Center 8/25/18

Robbie really wanted to go to the Butterfly Center and the Kolache Shoppe this morning. I promised earlier this week that I would take him. He enjoyed the breakfast, but only lasted a few minutes by the butterflies. He was glad to escape the house. Walking back to the car made him shaky and short…