Matching Scars 8/8/18

Robbie will get a matching scar next month when he has lung surgery again. I always have a hard time when I know he is going to have surgery. I hate to see him suffer and we know this isn’t a cure. The lung doctor is outstanding and I have confidence in his skills. I…

MD Anderson Update 8/7/18

Jim took Robbie to MD Anderson for multiple tests today. He also met with Robbie’s lung doctor. He will have lung surgery on September 6th. He will remove all the tumors in his lung. The tumors will be used by the clinical trial team. It will be a lot to go through and the recovery…

Restful Weekend 8/4/18

Robbie got a sweet card from a friend this weekend. He has been resting from his week and sleeping a lot the last few days. Appointments always take a lot out of him.

Day at MDA 8/1/18

We spent most of the day at MD Anderson today. We talked with a few people about the clinical trial and got opinions on what to do. Robbie decided to do it even though it will be very intense with a lot of procedures, doctor visits, hospital time, along with heavy treatments. All this with…

Clinical Trial Decision 7/31/18

The picture is only an example and not the same trial. We are having a difficult time deciding on the clinical trial. We learned more information today and it would involve more than one hospital stay, including one for at least three weeks. They would have to bring his body down to very low blood…

MD Anderson Updates 7/30/18

Although the growth of his tumors slowed down with his current daily chemo, the tumors are still growing . The largest tumor in his lungs is about two inches. No new tumors this time. Dr Ratan has three different treatment options and he said all options have pros and cons. We are waiting to hear…

Test Results = Tears 5/31/18

First….a sweet child singing about Peace in Christ. Keep praying for a miracle for Robbie. Sadly, we learned today that his cancer has continued to grow in his lungs and new tumors have started in both lungs. The immunotherapy that has helped so many people, had no impact on his cancer. The news is devastating…

Sleeping and Fever 5/18/18

Here is a picture of the kids playing in the snow when we lived in Iowa. Robbie spent most of today sleeping. He has been running a fever and doesn’t feel very good. His side stopped hurting, so that is good. Any pain that he has, we worry about the cancer spreading. The week of…

Treatment and Treats 5/17/18

Robbie spent the afternoon at MD Anderson in Katy. When he was done, I stopped for treats. He is feeling sick tonight and is complaining that his rib hurts on his side. I’m off to visit my new school tomorrow. I’m excited and nervous. I hope to learn more about my position and what age…

IV Fluids 5/16/18

Robbie got some much needed sleep while he received IV fluids this afternoon. We should all get more sleep tonight. We will definitely need a back up plan for the next round, so if it runs late, we will either have Jim along or stay in a hotel overnight. I can’t trust myself to stay…