Out for Supper 1/15/19

We met Robbie’s Aunt Edith and Uncle Bob for supper at Nyam Nyam Cafe tonight in Cypress. It is a small place with great food. Best crepes!

Robbie continues to take his chemo meds daily. They make him very tired. He is enjoying having his Aunt and Uncle visit.

Sloth Mug 1/12/19

Robbie received an adorable sloth mug in the mail today from a sweet friend we met attending a Marfan Syndrome conference a few years ago. This summer the conference is in Houston.

Robbie has gone 24 hours without a fever for the first time in about 2 or 3 weeks. He continues to cough off and on and is tired being back on chemo.

New Shirt 1/9/19

Robbie was given a new shirt from Lynn’s friend. “I run better than the government”…

He still has a fever today, but it isn’t as high and he feels better today. Tomorrow he starts the next round of chemo drugs. I hope this round isn’t as hard on him.

Fever and Sister Visit 1/9/19

Robbie 1994

Lynn flew in Tuesday to hangout with Robbie for a few days. He is running a fever and sleeping a lot.

It was difficult to return to teaching this week. Thankfully Lynn is here for a few days.

Thank you for all the kind messages. We are grateful for all the prayers and support. ❤

MD Anderson Updates: Terminal Cancer 1/7/19

Waiting for his appointment

The current chemo drug is slowing the cancer down, but also causes multiple side effects. It is all the Dr has left to try, so as long as it helps and doesn’t make him too sick, he will continue.

Robbie continues to have cancer in his lungs, along with a new tiny tumor on his heart and liver. It all looks about the same as two weeks ago when he was in the ER, so his Dr thinks the new drug is helping.

Dr Ratan told him today that his cancer is terminal. He has mentioned this possibly to Jim and I, but this is the first time Robbie has heard this. It is devastating news. We are so sad. It is so frightening for him and all of us.

Robbie has beat the odds so many times. Keep praying for all of us. ❤

Bookstore Adventure 1/3/19

After sleeping away his week, I talked Robbie into going to the bookstore. He was really too weak, so we walked in for a few minutes and left.

I am glad he was able to get out of the house. I will have to plan better next time and bring something for him to sit on. He could almost use a wheelchair, but I don’t think he would approve yet.

Better Day 12/30/18

Robbie with his new sloth today. He is having a much better day. His rash has really faded and he was feeling better today. He has been very weak and sleeping almost around the clock, back pain, and just feeling very off. He has also been coughing a lot due to the fluid in his lungs. We have been very worried. The new chemo drug is very harsh and has really made him sick and on top of that, he also had some kind of infection. His body has a hard time fighting any infection, which makes it extra scary when he is sick.

The Girls left for Tulsa 12/29/18

Lynn & Ruth are off to Tulsa

Lynn, Robbie, & Ruth

Ruth and Lynn left for Tulsa. They took a picture with Robbie before they left. I am thankful they were able to spend a week with us.

Robbie’s face has cleared up, but he is still covered in a rash and sleeping a lot. Today he will take his chemo drugs again to see if the rash gets worse or the rash is something else. We were at the ER until 7:30 last night and then an hour drive to Katy.

Some of his bloodwork was off yesterday. He had low phosphorus again, so they gave him an IV supplement and high lactic acid. We found out that is the reason for flooding him with IV fluids and doing an EKG. By the time we left, his lactic acid levels had gone down. They told us he would have been hospitalized if his levels had stayed high. More questions for his main Dr next time.

Home! 12/26/18

Leaving MDA

Robbie is home. His Dr said they normally would keep him longer because of his fever, but with it being Christmas week, he decided to send him home. If he isn’t better by Friday, he might have to come back into the hospital. He has multiple meds to take between his chemo meds and antibiotics.

We are thankful he is home. We have family pictures scheduled for tomorrow.