We left our house at 5:30AM for Robbie’s tests at Anderson. When we arrived, the line was out into the hallway and the person checking people in was painfully slow. After 45 minutes, Robbie finally got to check in. She was like the sloth in Zootopia.
After his tests, he was exhausted, but since he has been talking about the Butterfly Center, I talked him into going. My thought is that you can feel bad at home or while watching butterflies. He was too weak to use his camera and too weak to stay very long. I went to their guest services and a nice young man got a wheelchair for us and wheeled Robbie to our car in the parking garage. He also was a sweet tour guide as he walked us through part of the museum on our way out. I was mad at myself for thinking this was a good plan. He slept all the way home and looks better this afternoon.
Robbie and I had a great day today. After his bloodwork, we drove to Houston to The Kolache Shoppe and then the Butterfly Center. On our way home we stopped at Target to find the sloth ornaments.
His bloodwork is slowly coming back up, so his Dr is allowing us to travel to Oklahoma to see our girls. A couple weeks ago, his Dr was very hesitant to allow him to travel due to his low blood counts and breathing difficulties due to the fluid in his lungs.
Jim is having tests today to see if his tonsils have cancer too.
Robbie really wanted to go to the Butterfly Center and the Kolache Shoppe this morning. I promised earlier this week that I would take him.
He enjoyed the breakfast, but only lasted a few minutes by the butterflies. He was glad to escape the house. Walking back to the car made him shaky and short of breath. Hopefully he will feel better soon. He is getting tired of being sick.
I took Robbie to Houston’s Natural Science Museum and Butterfly Center today. His friend is here for a few days. They went to the University of Tulsa together. The boys had fun exploring the museum. We noticed a giant sloth in the dinosaur area today, that we have missed in all our trips. He also had fun taking pictures of butterflies. We had planned a quick trip to the zoo too, but Robbie was tired and it is so hot out today, that I really didn’t want to go either.
The end of next week he has his next set of scans. I’m glad we kept busy today. Yesterday I had too much time to think about it, which wasn’t a very productive idea.
We spent the afternoon at the museum between appointments. We had a wonderful afternoon together.
Tonight we are at MD Anderson for his next round of immunotherapy. They were supposed to start sooner, but it is after 6pm and they haven’t started his treatment yet. It takes at least 3 hours, so it is going to be a late drive home.
Ruth and I took Robbie to his appointments at MD Anderson today and then we took him to the Butterfly Center. It is one of his favorite places, but we haven’t visited since we moved to Katy. Praying his heart tests went well today. I’m not sure why they needed additional tests, so that always makes me nervous. Robbie loves seeing his sisters this week. Josh and Lynn drove back to Tulsa today and now Ruth is here for a few days.