We went to the Natural Science Museum today. Robbie had fun taking pictures of the Butterflies, rocks, and precious stones. There were several busloads of kids there, so we didn’t stay too long.
Now we are at MD Anderson to get his hearing aids adjusted. He really likes Hearts for Hearing in Oklahoma and is not happy to switch audiologist!
After waiting in the waiting room for an hour, we just learned they can’t help him and the appointment was made by mistake. I even called to check before we came.
Ruth and I took Robbie to his appointments at MD Anderson today and then we took him to the Butterfly Center. It is one of his favorite places, but we haven’t visited since we moved to Katy. Praying his heart tests went well today. I’m not sure why they needed additional tests, so that always makes me nervous. Robbie loves seeing his sisters this week. Josh and Lynn drove back to Tulsa today and now Ruth is here for a few days.
Robbie and I had fun at the Butterfly Center today. Robbie took several pictures. We also visited the dinosaur exhibit.
Here is a short slideshow of Robbie’s year. We are very grateful for everyone’s support. We couldn’t have gone through this year without you.
The Mudroch Family
Robbie and I went to the Science Museum and Butterfly Center this afternoon. It was very crowded! He enjoying being there and mostly sat on the bench watching the butterflies. They kept landing on his red hat. He also received a new sloth in the mail today, which really made his day!
I took Robbie for a quick trip to the Butterfly Center. He really enjoys going there. The different butterflies are so beautiful. Understandably, he was pretty tired after walking around. I’m happy he is doing so well and the pain meds are working.
We visited the Science Museum and the Butterfly Center. It was very peaceful there today.
His bloodwork matches the clinical study, so now his tissue samples have been sent off to be tested to see if they are also a match. We will find out in 3-4 weeks.
Countdown to lung surgery in less than 2 weeks. We are all having problems sleeping. We are buying precious time with the surgery, but it isn’t a cure. From what we hear, it can be a rough recovery. He will have some tests next week before the surgery. Surgery is Monday December 11.
Other Clinical trials: Thank you to the people that have been researching and sending information. If he doesn’t qualify for the first study, we will look at all the alternatives.