Meeting Curly the Sloth

Three years ago, Robbie was given his first behind the scenes tour at the zoo and met Curly for the first time. This started a close relationship between Robbie and the zoo keepers. We didn’t know then what a life savor the zoo would be. We are so grateful to the Houston Zoo.

Butterfly Center May 2018

A year ago today, we were at the Butterfly Center together before Robbie had to go to MD Anderson for his next treatment. Sadly, we wasted precious time on immunotherapy. It didn’t kill the cancer, but knocked out his thyroid function.

He laughed at the picture of the Butterfly on his shoulder and the other one flying by his mouth as I took the picture. I can’t believe it has been a year already. We had so much fun spending time together.

Robbie was truthful, kind, and could always make me laugh. He wanted the people he cared about to be happy.

Happy Mother’s Day Weekend

I hope everyone has a wonderful Mother’s Day weekend. Robbie liked tea, so Ruth set up a tea party using my mother’s dishes and Robbie’s sloths. I love the way my girls supported Robbie and us the entire 4 years that he was sick. I love my children so much. I wish I could be with our girls this weekend.

The day started out great when I found out it was a “rain day” so school was cancelled. I have a lot of paperwork and a couple projects to complete for work, so I had high hopes of getting a lot done. Unfortunately grief doesn’t follow any plan and instead I spent the day very sad and missing Robbie. Spent some time in our Sloth Sanctuary (Robbie’s room) just resting and wishing the year could be different. Sad that life doesn’t always work out the way we plan. A wedding planned that we were looking forward to all year has been cancelled. My husband is very tired due to his cancer and the last couple weeks he has been even more run down. I know there will be better days. I was actually starting to do some things that I enjoy again, but the storms of this year are relentless.

Keep praying ❤

Pictures

4 years ago today in Costa Rica for Ruth and Nick’s wedding. Robbie had so much fun.

The girls sent me a bracelet for Mother’s Day that says…forever in my heart..RJM 1993-2019. So sweet<3 Tears

I have the hardest time in the evenings when I am so used to spending time with him.

Keep Swimming

I have read that when people grieve, they go through an angry phase, but I didn’t expect it. When my parents passed away, I was only sad and not angry. With Robbie I am sad and angry. I can switch from being mild Bruce Banner to the Incredible Hulk in seconds. Missing Robbie so much.

Keep Swimming!

At the Hospital with Robbie in October

Hearts for Hearing

Two years ago today, Robbie was getting his hearing aids adjusted at Hearts for Hearing. He was so happy to be able to hear again. One of the chemo drugs Cisplatin took his hearing and caused non-stop ringing in his ears. He liked Hearts of Hearing so much that when we moved to Houston, he was really upset that he had to change audiologists.

Missing him so much. ❤

Nurses, Doctors, Therapists, Volunteers

Nurses have been in the news lately, so I decided to do a post dedicated to them. ❤

Robbie had many wonderful nurses. They watched over him at night when we couldn’t be there. Built sloth towers on his I V pole with him. One of the doctors would even make up reasons to move him to his favorite floor and nurses if he landed in a remote location of the hospital.

In fact the night before we lost him, he was moved to the Palliative Care unit and Robbie assumed he had been moved to have a better room. He thanked them, which was one of the last things he said. A few came and found us when they heard of his loss, shed tears with us, and said good bye to Robbie. We are very grateful to the entire hospital staff. The nurses, therapists, PA’s, volunteers, and his Doctors.

A nurse making a sloth IV tower together

PT working on his leg

PT taking him outside for the first time in almost three weeks

Putting the strong chemo bag onto the IV cart

Dr Linn. His orthopedic surgeon for his leg

Dr Ratan. His main Dr at MD Anderson

Robbie with the Singing Doctor that sang to Robbie before and after surgery

Robbie dressed up for Halloween

Robbie donating sloths

Robbie and his OT on his 24th Birthday. She bought him balloons and treats. Met him outside of work for ice-cream and was always very encouraging to him.

Robbie with a therapy dog. His owner supported Robbie through out his entire illness and even brought the dog to our house. Now they are both angels.

Rough Day

I had a rough day today. I miss Robbie so much. I really wanted to leave work today by 9AM. I thought about getting a sub. I was so overcome with emotions thinking of Robbie. Work was also very difficult today.