Marfan Syndrome Awareness Month 2/2/23

Robbie used to be on the Marfan website. February is Marfan Syndrome awareness month. Know the signs and save a life. You can find more information on this website. https://marfan.org/ We didn’t find out until Robbie started high school that he had Marfan Syndrome. He had a new doctor that was very smart and saw…

In the Editing Process 1/29/23

Quiet day. I am using Robbie as my motivation to review the edits and suggestions on my manuscript. It is like getting back your thesis in college for rewrites except on a larger scale. At first, not having done this before, I saw all the lines throughout the book and thought…oh no…does this all need…

Riding the Grief Wave 1/22/23

I deleted my last post. I sounded so negative. I am riding the waves of grief. Sometimes I can do it and other times I wipe out. Seems like the past week was a hurricane wave with no end to the storms. It is really hitting me hard that the precious boy from China is…

Sloth Sanctuary 1/18/23

This day 5 years ago is one of my favorite memories of Robbie. The people at the Sloth Sanctuary knew in advance about his cancer and love for sloths, so they allowed us to spend a couple hours in the Sloth nursery which wasn’t part of the tour. Even though they normally don’t let anyone…

Keyboard for a Sweet Boy 1/8/23

We found a used keyboard for our friend off Facebook marketplace. He looked so miserable today hooked up to many different things that he was missing his usual smile. As soon as his mother put the keyboard in front of him, he started playing and was playing as I walked away. Later he sent a…

Beautiful Flowers 1/7/23

The family we know from China gave me a beautiful vase with flowers. She made the Lego flowers and made origami stars in the vase. Her sweet boy continues to be in the hospital fighting cancer. It is hard to see him so weak. Thankfully, he was having a better day today when I visited….

Last Day of Vacation Anxiety 1/2/23

It is the last day of winter break and my anxiety is high with all the work ahead this semester. It is overwhelming. Teaching, meetings, and a Texas-required reading academy course. I am also struggling with the fact that our sweet friend from China continues to be in the hospital. Seeing him brings brought back…

Carrying Robbie’s Memories into 2023

We are carrying Robbie’s memories with us into 2023. On this picture, the girls we’re holding Robbie, so he could stand. It was only a few days after he got out of the hospital for his reconstructive leg surgery.

Houston Zoo Lights 12/28/22

It is always fun to visit the Houston zoo lights each year. We had a great night tonight. Robbie used to love going. On a sad note, our sweet friend from China continues to be in the hospital and is now in the ICU. I received a text from his mom tonight. So heartbreaking. 💔….