We were invited to Hengyi’s Chinese Service today. So very sad. They spoke in Chinese and then an interpreter spoke in English. They talked about believing in God and Hengyi being in Heaven. They thanked us and said they plan to help other families like we helped them. A beautiful and very intimate service. So…

I am trying to process a different kind of grief. Not like my grief for Robbie, but grieving the end of a beautiful life. Like Robbie, Hengyi had many dreams for his future. They both suffered years of cancer treatment with positive attitudes and never gave up. So much to learn from the way they…

A precious child gained his angel wings after fighting the same cancer as our son. 👼🏻🎗️He kept a positive outlook and filled our lives with joy the past year. Loved him so much. Praying for his family. 😢💔 I have mentioned him a few times in the blog. We met last March at a childhood…

4 years ago today, our sweet boy lost his battle with cancer. We have been sharing Robbie stories. He could always make us laugh and I am still amazed how he never gave up. His strength inspires me to keep going. I appreciate everyone that continues to support us.

2/7/19 Robbie arriving at MD Anderson Emergency Room When we arrived at the ER 4 years ago, I never thought this would be our last trip or that in 5 days, he would be gone. We went to the ER enough times when I feared the worst that it had become part of our life,…

Robbie used to be on the Marfan website. February is Marfan Syndrome awareness month. Know the signs and save a life. You can find more information on this website. https://marfan.org/ We didn’t find out until Robbie started high school that he had Marfan Syndrome. He had a new doctor that was very smart and saw…