February is Marfan Syndrome Awareness Month 2/2/21

February is Marfan Syndrome awareness month. You can visit this link for more information. https://www.marfan.org/about
Robbie used to be on their home page. He loved his Marfan friends. We went to yearly conferences.
We took Robbie in 2008 to a new Dr that realized Robbie had many of the signs of Marfan Syndrome.
…indented chest, curved spine, long thin fingers, long arm span, and his tall thin built. He sent Robbie to a heart specialist that found he also had an enlarged aorta and other heart issues.

Know that signs and save a life!

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