Marfan Syndrome 2/17/19

Robbie had Marfan Syndrome and was looking forward to attending the National Marfan Foundation conference in Houston this summer and had many Marfan friends. A sweet friend of mine has started a fundraiser on Facebook for the National Marfan Foundation in Robbie’s honor. Here is a link to her page.

 

Robbie’s Obituary

https://www.dignitymemorial.com/obituaries/katy-tx/robert-mudroch-8159274

On Tuesday, February 12, 2019, Robert “Robbie”James Mudroch, passed away from bone cancer at age 25.

Robbie was born on June 23,1993 In Westerville, OH to Jim and Cindy (Graves) Mudroch. He attended high school at OSSM Oklahoma School of Science and Math. In December 2015, he graduated from the University of Tulsa with a double major in mathematics and computer science. 

In 2018, Robbie was offered his “dream job” with Google, but cancer kept him from accepting. He had a love for outdoor photography, liked to write music, enjoyed programming, playing computer games, chatting online with friends, and he loved sloths! He enjoyed going to the Butterfly Center and visiting Curly the sloth at the Houston zoo. 

Robbie was known for his quick wit, funny jokes, infectious smile, and his kind and compassionate spirit.

Robbie was preceded in death by his grandparents, Arnold and Margaret (Riechers) Graves of Platteville, WI and John and Peg (Cook) Mudroch of Fredonia, WI as well as his uncle, Bruce Larson, and cousin, Jonathon Mudroch. 

He is survived by his parents, Jim and Cindy Mudroch of Katy, TX, his sisters, Ruth (Nick) Holland and Lynn Mudroch of Tulsa, OK; step grandma Marion Mudroch and many aunts, uncles, and cousins. 

Friends and family are welcome to attend Robbie’s Celebration of Life anytime from 5 to 8pm on Monday, February 18th at Katy Funeral Home, 23350 Kingsland Blvd., Katy TX. He will be buried in June at the Hillside Cemetery in Platteville, WI near his grandparents. 

Robbie liked bright colors and sloths, so feel free to dress with bright colors. 

Donations can be given in Robbie’s name to the National Marfan Foundation, The Houston Zoo Natural Encounters Sloth Exhibit, The Tulsa Zoo Sloth Exhibit, or to OSSM Oklahoma School of Science and Math.

We are grateful for all the support and prayers during Robbie’s long illness and for the excellent care he received at MD Anderson Cancer Center.

Valentine’s Day 2/14/19

Robbie received valentine gifts from a friend yesterday. I know Robbie would have loved the gifts. I cried opening the sloth when I saw the valentine note.

I bought a valentines sloth for him a couple weeks ago and thankfully I gave it to him last week. He had a rough day, so I gave it to him and he smiled briefly that I had found a sloth with a heart.

Valentine’s Day is also the day my mother passed away 4 years ago. Just a few months before we found out Robbie had cancer.

Both in heaven with no more suffering. ❤

Robbie’s Celebration of Life Information 2/13/19

You are invited to come celebrate Robbie’s life with us. Whether you are friends, family, or have been following his blog, we would love to see you. Robbie’s ”Celebration if Life” will be in Katy, TX. See below for more details.

We are waiting until June to travel to Platteville, Wisconsin, where he will be buried with my parents along with a short prayer service at his gravesite. It was going to be just Jim and I, but some of our friends and family have been interested in joining us, so I will post a date at a later time.

Thanks again for all your love and support. ❤

Updates 2/11/19

He had the lung tube inserted today. He also has an infection in his lungs. He is weak and upset. We are keeping one person at a time with him around the clock.

The sarcoma team spoke with me today, which was a heartbreaking conversation. I was told that this will probably be as good as he gets. Most likely he will decline to being asleep all the time. We can only switch to taking him home if he can be on lower oxygen. He has cancer is throughout his body. He will be moved to the palliative care unit at MD Anderson.

They have him hooked up to a variety of monitors and he hates all the cords on him. He is having a lot of panic attacks with breathing.

Our girls changed their flights and are staying in Houston. Their significant others are coming down later this week. My sister Terry also changed her flight and is staying.

Today we are seeing Jim’s cancer doctors too.

Keep praying ❤

Hospital Updates 2/10/19

Robbie continues to be very weak and breathing heavily. They gave him blood last night and plan to give him three more bags today. He is very uncomfortable with only one lung working right now. They plan to put the tube into his lung tomorrow morning when they have their surgery team together. I was really hoping they would today. They didn’t let him eat incase they needed to have an emergency surgery. Finally, they are letting him eat today, but he can only handle liquids, anything else makes him choke and he can’t breathe. It is heartbreaking to see him struggle and be so weak that even standing is too much for him.

The girls are both here from Tulsa. Lynn flew in a couple days ago and Ruth arrived this morning. He has a friend that drove from Tulsa, but unfortunately Robbie is too weak for company right now.

I spent the night with him and he was able to sleep, but was talking in his sleep, which he never does. A few times I asked what he needed and then realized he was sleeping. He has received pain killers as needed.

We appreciate everyone’s support. ❤

At the Hospital 2/9/19

We took Robbie to the ER and he has been admitted to the hospital. His lung that was drained on Thursday has filled to the top with fluid again. He is very short of breath and weak. He is on oxygen and a lung specialist will see him tomorrow. They will probably put a tube into his lung to allow it to constantly drain. The tumors are causing the fluid. He also has low blood counts, so he is getting a transfusion.

He has a friend visiting from Tulsa, which is so sweet.

Ruth moved her flight and is flying in tomorrow morning.

It is so difficult to see him suffer. He is so uncomfortable and unhappy.

Keep praying ❤

Tears 2/8/19

So many tears and prayers. It doesn’t seem possible that our sweet boy is so full of cancer. His Dr advises that he no longer travel out of state. Robbie is asking to visit Curly the Sloth at the zoo, so I will take him as soon as he recovers from his lung procedure. He is very tired from a day of tests and procedures yesterday. He had more scans today.

I am going to take a leave of absence from my job. I teach K-5 children with autism. I work with wonderful people and I am going to really miss them while I am out. I am thankful to work with such a great group.

My sister Terry is here and so is Lynn. Ruth is coming in a week.

Sad Update 2/7/19

Robbie has been having trouble breathing, so they did scans and found that his left lung was full of fluid. A lung specialist did a procedure today and removed 600ml of fluid from his lung. His color is already much better. He was looking very gray.

The latest scans show that his cancer is spreading quickly and his Dr doesn’t recommend additional treatment. He told us that Robbie only has weeks to live and recommends hospice.

We are so heartbroken.

Tears ❤