Robbie with his new sloth today. He is having a much better day. His rash has really faded and he was feeling better today. He has been very weak and sleeping almost around the clock, back pain, and just feeling very off. He has also been coughing a lot due to the fluid in his lungs. We have been very worried. The new chemo drug is very harsh and has really made him sick and on top of that, he also had some kind of infection. His body has a hard time fighting any infection, which makes it extra scary when he is sick.
Ruth and Lynn left for Tulsa. They took a picture with Robbie before they left. I am thankful they were able to spend a week with us.
Robbie’s face has cleared up, but he is still covered in a rash and sleeping a lot. Today he will take his chemo drugs again to see if the rash gets worse or the rash is something else. We were at the ER until 7:30 last night and then an hour drive to Katy.
Some of his bloodwork was off yesterday. He had low phosphorus again, so they gave him an IV supplement and high lactic acid. We found out that is the reason for flooding him with IV fluids and doing an EKG. By the time we left, his lactic acid levels had gone down. They told us he would have been hospitalized if his levels had stayed high. More questions for his main Dr next time.
One of the side effects of the new chemo is a hand and foot rash. Instead Robbie is covered from head to toe with a rash.
We have moved our family pictures three times this week, since Robbie has been sick. Today is the last day we can do pictures and he looks terrible. The girls leave in the morning and we don’t plan to all be together again until Lynn’s wedding in March. Trying to coordinate bringing the girls back, a photographer, and Robbie being well enough for pictures on the same weekend isn’t very promising.
I am thankful for our time together as a family this week. I pictured the week to be much different, but cancer made new plans for us. Our family Christmas dinner on Grandma’s China was replaced by a meal at MD Anderson on paper plates. Making cut out sugar cookies were replaced by Oreos. Although we got a few smiles from Robbie when we opened gifts, most of the time he was feeling sick and lying down near us.
His best Christmas was really a couple weeks ago when one of Jim’s coworkers sent him a box of sloth related gifts all wrapped in sloth Christmas paper. He was so happy and had so much fun opening each gift.
Robbie is home. His Dr said they normally would keep him longer because of his fever, but with it being Christmas week, he decided to send him home. If he isn’t better by Friday, he might have to come back into the hospital. He has multiple meds to take between his chemo meds and antibiotics.
We are thankful he is home. We have family pictures scheduled for tomorrow.
Although we didn’t plan on spending Christmas at MD Anderson, Robbie is getting excellent care while he fights an infection.
The volunteers served Christmas dinner to the families and patients in the hospital today. They also gave Robbie gifts today. He received a blanket and small teddybear. So sweet.
Ruth and Lynn have been taking turns staying with him. Tonight Lynn is with him. Robbie is very tired and doesn’t feel very good. As soon as his bloodwork is better, he will be able to go home. We hope for tomorrow.
We brought Robbie to the ER at MD Anderson this morning and they have admitted him. He has a fever and low phosphorus. He is being treated with IV antibiotics. They ran blood tests and took a lung X-ray. They will decide tomorrow if he needs to stay longer or can continue with treatment at home.
I have family pictures booked later this week, so hopefully that will still work out while everyone is home.
We celebrated Christmas tonight. Robbie received a couple new sloths and an electric blanket. Jim’s sister Peggy is visiting from Wisconsin. Robbie has been under the weather today. The new chemo drug makes him very tired and upsets his stomach.