With holidays approaching, if you have time, send Robbie a card. It helps to lift his spirits.
23622 Messina Harbor Dr
Katy, TX 77493
He continues to rest and has a slight cough due to the fluid in his lungs. He will have bloodwork in the morning, which will determine our plans for the week. If possible, we will travel to see the girls in Tulsa.
We spent most of the day with my nephew and his family. Robbie was a good sport and played Life with Kellen tonight. He said that none of his kids have cancer as he played the game.
This week Robbie has slept a lot as he recovers from the last round of chemo.
We are so thankful for the many people that have been supporting us since Robbie got sick. Prayers, text messages, cards, friends making food, and sweet gifts for Robbie. It is so thoughtful and kind. We are very grateful.
We keep waiting and waiting to get things started for Jim. Each time they send him to another team, it seems to take a couple weeks. We are now waiting on the ENT to look at his tonsils and do a biopsy. We thought it would all happen this week, but nothing has been set up.
Robbie is home from the hospital! He is wearing a new hat from a friend at work. It is chilly in Houston today. In the 50’s.
Robbie finished chemo yesterday and got a blood transfusion over night. This meant that they had to check on him and get his vitals every hour all night long. He was so heavily drugged that he doesn’t even remember. I felt like I stayed at the museum from the movie… Night at The Museum. He slept most of the day yesterday, but has more energy after the transfusion. They gave him two bags of blood. Now he has to stay in the hospital for his kidneys again.
I really like the doctor that does the rounds on the sarcoma floor. She is older and full of energy. Robbie had a crummy older room in a remote part of the hospital on his 1st day. She called the people in charge of rooms and told them she had an aspergers patient that couldn’t handle being in a new location with different staff and got him moved back by her and in a much better room. I love that she watches out for him.
The cafe at MD Anderson is basically shut down on the weekend, with just a few choices left. I hear this lady yell across the cafe to her family…three times no less….Get anything you want and I will pay for it. ….anything! I wonder…did her family members think…wow..I will buy the $3 dollar sandwich instead of the $2 dollar one, since she is buying?? Haha.
Robbie is contently playing on his computer, while I am working on learning materials for my students. He is very tired and has low red blood counts, so they are going to give him a blood transfusion tonight. The nurses ask him about his sloths when they stop by and give him a lot of attention.
I asked Robbie for a blog picture. Jim is going there tonight. Lynn just took off for Oklahoma. It really helped having her stay with Robbie this week.
Robbie has sloths on his IV cart. Lynn is staying with Robbie again tonight. Jim and I were both too exhausted to drive to Houston tonight.
It has been an emotional week. It is difficult to have both Jim and Robbie sick. I found a new counselor to try on Monday after work.
Lynn and Jim at MD Anderson
Lynn went with Jim to the Dr today. Jim is in stage 3 Leukemia called CLL. He will need either chemo, then chemo pills or just the chemo pills depending on the tests they ran today. He has to have a biopsy on his tonsils because they also lit up to see if they have cancer too. If his tonsils are okay, then he can be managed with the chemo pills, so more waiting to know the next steps.
Robbie continues with chemo in the hospital. Lynn is with him tonight.
Needless to say it has been a long day. I thought I would be okay to go to work today, but I should have gone with Jim. I spent the day worried about him and Robbie. Then I got bit by one of my students on my upper arm, which was very painful. At that point, I fell apart and shed a few tears for the day.
We visited Robbie at the hospital tonight. Lynn has been with him for 24 hours. No one is able to spend the night. The nurses are busy taking good care of Robbie. They like his sloth collection.
Jim has his big appointment tomorrow with the Leukemia team. Lynn is going with him. We are nervous about what we will learn.