Lynn and Robbie went to the same tea place as yesterday and used their computers along with having tea. Next they had lunch at Pho Saigon. Best part of lunch was finding the soursop fruit drink like they had in Costa Rica. The siblings have had a fun week together.
Today after Robbie had a bloodwork appointment, Lynn took him to Torchys Tacos. Robbie really likes spicy food since he has gone through chemo.
He is up to three chemo pills a day and so far minimal side effects. Pazopanib (Votrient) is currently in clinical trials for osteosarcoma, but he isn’t in one of the clinical trials. This is a targeted chemo drug that can affect a tumor’s ability to make new blood vessels. You can Google it along with osteosarcoma to find out more information.
Robbie and his sister Lynn continued their tea adventures and went to a new spot today. It is a great way to do something inside in the heat and the kids are having fun, which I love to see! Today it was Kung Fu Tea in Katy.
Robbie spent another great day with his cousins. The new chemo makes Robbie very tired, so he fell asleep before they left this afternoon. They had a wonderful weekend together. I’m so thankful they made the effort to visit Robbie.
Some of my nephews flew to Houston to surprise Robbie for his 25th birthday. They have made plans all weekend for him. It is so sweet. In the back seat..Eric is from Kansas City and Brad is from Minneapolis. In the front seat…Craig is from Dubuque, IA and Brian lives in Katy near us. I know my parents would be proud of their grandchildren watching out for each other.
Robbie’s sloth waiting for him to come back from bloodwork
I took Robbie to MD Anderson yesterday for bloodwork and to see Dr Ratan. What Robbie thought were bug bites are actually blisters caused by the chemo he is taking. So far only a few, but this can become a problem for some people. His blood pressure is up, which is normally very low….another side effect. His bloodwork so far is looking okay except his platelets have started a slow decline. We doubled his chemo drug and so far the only additional side effect is being tired. He will have scans the end of July to see if the new drug is working. Keep praying for him.
He received a couple cute birthday cards in the mail yesterday, which he enjoyed. We also visited the Museum of Natural Science after his doctor appointments. He didn’t last too long because he was so tired, but he had fun walking around by the dinosaurs. The museum was setting up tables and food for a big event. Robbie said he wishes he could rent the museum and have a party. I told him sorry, but that isn’t in the Birthday budget.