The Sloth Adventures Continue 6/28/18

Today after Robbie had a bloodwork appointment, Lynn took him to Torchys Tacos. Robbie really likes spicy food since he has gone through chemo.

He is up to three chemo pills a day and so far minimal side effects. Pazopanib (Votrient) is currently in clinical trials for osteosarcoma, but he isn’t in one of the clinical trials. This is a targeted chemo drug that can affect a tumor’s ability to make new blood vessels. You can Google it along with osteosarcoma to find out more information.

Surprise Birthday Celebration 6/22/18

Some of my nephews flew to Houston to surprise Robbie for his 25th birthday. They have made plans all weekend for him. It is so sweet. In the back seat..Eric is from Kansas City and Brad is from Minneapolis. In the front seat…Craig is from Dubuque, IA and Brian lives in Katy near us. I know my parents would be proud of their grandchildren watching out for each other.

MD Anderson Updates 6/22/18

Robbie’s sloth waiting for him to come back from bloodwork

I took Robbie to MD Anderson yesterday for bloodwork and to see Dr Ratan. What Robbie thought were bug bites are actually blisters caused by the chemo he is taking. So far only a few, but this can become a problem for some people. His blood pressure is up, which is normally very low….another side effect. His bloodwork so far is looking okay except his platelets have started a slow decline. We doubled his chemo drug and so far the only additional side effect is being tired. He will have scans the end of July to see if the new drug is working. Keep praying for him.

He received a couple cute birthday cards in the mail yesterday, which he enjoyed. We also visited the Museum of Natural Science after his doctor appointments. He didn’t last too long because he was so tired, but he had fun walking around by the dinosaurs. The museum was setting up tables and food for a big event. Robbie said he wishes he could rent the museum and have a party. I told him sorry, but that isn’t in the Birthday budget.

Setting up for an evening event

Thank you for all your support.