Test Results = Tears 5/31/18

First….a sweet child singing about Peace in Christ. Keep praying for a miracle for Robbie.

Sadly, we learned today that his cancer has continued to grow in his lungs and new tumors have started in both lungs. The immunotherapy that has helped so many people, had no impact on his cancer. The news is devastating to all of us, especially for Robbie.

They stopped the clinical trial and for now he will start taking a chemo drug that for some people has slowed the growth of new cancer, but rarely kills osteosarcoma. The drug is called Pazopanib and it is in pill form. It will take time to get insurance approval since the estimated cost is $10,000 per month.

They will do scans again in 6-8 weeks. At that point, he will either continue the new chemo drug or jump to something more toxic. The fear of jumping to another harsh chemo is that if it doesn’t work, it could destroy the rest of his bone marrow, taking most of the other options with it. This could be next in line or another clinical trial. Unfortunately the current clinical trials for osteosarcoma are mostly at stage 1, so they don’t have enough data to know if you are going down the right track or wasting time.

He has a wonderful doctor and nurses at the sarcoma center and they are also sad with the latest news. We spent over an hour together today as we talked about the latest tests results and what possible steps ahead.


Matthew 19:26 New King James Version (NKJV)

But Jesus looked at them and said to them, “With men this is impossible, but with God all things are possible.”

12 Comments Add yours

  1. Donna O'Sullivan says:

    Completely moved by the song and with a heavy heart will say prayers for Robbie


    1. Thanks Donna💗


  2. Mindy says:

    Sad all over…love you guys, Mindy


    1. Love you too😘


  3. Pam Harris says:

    My heart is sad for you all… 💙


  4. Mary Glass says:

    Cindy, my heart hurts for Robbie & you all. Please know we love you and will continue to pray for a miracle.


    1. Thanks Mary. We loved seeing you guys💜


  5. Debby says:

    No words . . .so sorry . . .but still believing in miracles. Debby ❤


    1. Thanks Debbie❤️


  6. Norma says:

    We were just wondering how things were going. So sad to hear, but know that alot of us are praying for you all, and especially Robbie. The previous comments are so true–miracles can happen. Take care!


    1. Thanks Norma💗😘


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