Robbie and Grandpa Graves 3/31/18

Here is a picture of Robbie with his Grandpa Graves. (My father) He passed away 15 years ago from cancer. I think of him often. He was very quiet and kind. Arnold L. Graves September 23, 1926 – March 31, 2003

Anime Matsuri Convention 3/30/18

Ruth took Robbie to the Anime Matsuri Convention today. He really likes Anime and watches it a lot on his computer to pass time at MD Anderson. He dressed up like One Punch Man with the outfit we got him at Halloween. He took pictures, found a sloth, and got to see some of his…

Hearing Test and Houston Aquarium 3/29/18

We started the day at MD Anderson. I’ve been concerned about Robbie’s ears and we don’t live near our ear doctor anymore. We met a very smart young ENT and he told us several things about Robbie’s ears and took amazing pictures of his ear drums. Robbie also had a hearing test. His hearing loss…

Robbie’s Room and Sweet Cards 3/28/18

Ruth and I worked on Robbie’s room today. We hung up some of the pictures that he took and put his sloths on a bookshelf. Robbie really appreciates all the cards that people have sent. You are really helping him! Thank you for all your support!

Disappointing Day 3/26/18

It was a very disappointing day. Robbie was supposed to start the clinical trial today. He had bloodwork and then we waited 3 hours to find out that treatment had been cancelled today due to low blood counts. We don’t know why his white blood count is so low today. He was given a shot…

Immunotherapy Starts Monday 3/24/18

Robbie starts the clinic trial with immunotherapy on Monday. We will meet with his main doctor again Monday morning and then Robbie will be hooked up to one drug at a time. There are two different drugs. They shouldn’t cause hair loss like the other drugs, instead there is a whole list of different side…

Tests and The Butterfly Center 3/22/18

Ruth and I took Robbie to his appointments at MD Anderson today and then we took him to the Butterfly Center. It is one of his favorite places, but we haven’t visited since we moved to Katy. Praying his heart tests went well today. I’m not sure why they needed additional tests, so that always…

Biopsy is Done 3/21/18

Biopsy Today Robbie had a biopsy on one of the tumors in his lung today. He did well. He was asleep most of the day. They finally let us leave the hospital at 6:00 tonight. Lynn spent the day with us, which really helped! We have to go back tomorrow for tests on his heart….

Zoo Trip 3/20/18

Robbie had one appointment this morning and then we took him to the zoo. Tomorrow Robbie has a lung biopsy, which will take a couple hours and then he has to stay for an additional three or more hours to make sure his lung doesn’t collapse. They plan to access the tumor through his back….

Testing and More Testing 3/19/18

Robbie had a long day of testing before he can start the clinical trial. They did some of the testing at the main MD Anderson campus and some of the testing was done at their research building. Wednesday he will have another lung biopsy. Robbie is so brave to go through that again. You would…