February is heart month and also Marfan Syndrome Awareness month. If you are like me, before a few years ago I heard of never heard of Marfan Syndrome. There are a variety of signs and they vary from person to person, but the area that impacts everyone with Marfan Syndrome is their heart, which can easily go undiagnosed until it is too late causing an aortic dissection. Luckily, Robbie had a very smart pediatrician when we moved to Oklahoma that noticed he had some of the signs and encouraged us to check it out. We have also attended a few family conferences, which I highly recommend.
Here is a link to the National Marfan Syndrome website for more information. Know the signs and save a life. Robbie was on the cover a few years ago. I just noticed he is still on this page if you scroll down. https://www.marfan.org/about