MD Anderson Updates 2/8/18

Robbie zip lining on our last trip.

We received several updates today.

The Good news first: The lung that had surgery is currently not showing any cancer activity. There isn’t any cancer activity anywhere else in his body beyond the lung that didn’t have surgery. Slow tumor growth in the tumors in the other lung and an additional tumor. The downside is for the amount of chemo since last June, you would hope for no living cancer.

Bad News: His doctor continues to think his cancer is terminal. This is the first time Robbie has heard the doctor say this and he is understandably concerned and upset. We keep hoping that there will be a breakthrough with a new treatment. Who really knows what is ahead for any of us.

Current Plan for Treatment: Robbie didn’t qualify for the clinical study. His Dr will monitor Robbie and scan monthly for cancer. When his tumors become problematic or a certain size, he will put him into one of the other trials and/or lung surgery. His doctor’s goal is quality of life. (since treatment makes Robbie very sick) I’m on the fence on whether I think the “wait and see” method is best, but I do agree that quality of life is important. I also don’t want to do anything that will cause more harm than good. I need to do more research.

We are not giving up as the fight continues. We really appreciate everyone’s support. ❤

12 Comments Add yours

  1. Pam says:

    Hugs and prayers as you digest the news and continue the fight! ❤️

    Liked by 1 person

  2. Leah says:

    Thinking of you Robbie and family!


  3. Mary Glass says:

    Thank you for the update. We continue to pray for you all.


  4. Nadine says:

    Praying for you. You are right, we are all terminal until God brings us home. That is why it’ important to live each moment. Thank you far sharing your adventures! Sending love♥️


    1. Thank you Nadine ❤


  5. Beth and Carl Riechers says:

    I’m so glad you all had such a wonderful trip to Costa Rica. I think of you and Robbie everyday. We will continue to keep all of you in our prayers. Call or message me when you feel up to it. Let me know if there is anything we can do to help – maybe come down to Houston again? Love you all ❤


    1. Thanks Beth. Love you too. ❤


  6. Thank you for the update. You remain heavy on our hearts and uplifted in prayer. You are an inspiration to live each day to the fullest.
    Could you explain why lung surgery for the second lung isn’t a good option right now?
    Love & blessings to you all ❤


    1. Thanks Kathy. I’m not sure why it was talked about and then shelved. I believe the greatest issue is the concern of the need for multiple lung surgeries as the tumors continue to grow and each surgery damages the lung. They expect to do the other lung eventually. Wouldn’t surprise me if both lungs end up with more than one surgery. Unfortunately removing the tumors doesn’t stop more from growing. I’m hoping some of the treatments used in the trials will start working better.


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