Sloth Sanctuary 1/18/18

We took Robbie to the Sloth Sanctuary today! It was a fantastic day! They took us on the regular tour and because of Robbie’s love for sloths, they took us behind the scenes to the baby sloth nursery and let Robbie hold a baby sloth and hang out with the baby sloths for a couple hours.

We also met the sweet lady, Judy, that started the Sloth Sanctuary with the Sloth named Buttercup several years ago.After the tour, they gave Robbie multiple sloth gifts. They are wonderful kind hearted people! They have been following his blog. We can’t thank them enough for such a special day for Robbie.

Thank you to everyone that made this possible for Robbie. I took several pictures on my good camera and will post more after our trip. ❤

Coffee Plantation Tour 1/17/18

Robbie went with his sisters to tour a Coffee Plantation this morning. They learned about coffee plants and all about coffee. They had a great time.

This afternoon, we had a five hour van ride to the Caribbean coast to our hotel that is just 20 minutes from the Sloth Sanctuary. We drove by the Sanctuary today and Robbie was very excited!

Costa Rica 1/16/17

We are in Costa Rica at our first hotel. We are relaxing and enjoying the great scenery and weather.

It took awhile to get Robbie through the airport security with his titanium leg. They kept scanning his leg and patting his leg down over and over!

Robbie is loving being on the trip!! The sloth sanitary is scheduled for Thursday.

More Lung Updates and Afternoon at the Zoo 1/10/18

More lung updates/ Clarifications

I only posted part of the lung report yesterday. The rest I wanted to clarify from his oncologist first. I was going to wait until we see him in a few weeks, but after a sleepless night, I decided, I would contact Dr Ratan today.

They mentioned in the report that they removed a rib and listed the size, color, and it was sent to pathology. They had it listed with the other tumors and wrote that it is “grossly unremarkable”… My mind started racing with the worst possible scenario and so did Jim….hence our restless night. Why did they remove it? Did it look cancerous? Is the cancer spreading? Spreading back to the bones is even worse than the lungs for prognosis.

Well…the rib was removed as part of surgery and there isn’t cancer in his rib and they didn’t expect cancer either. I told Robbie, the surgeon needed one of his ribs to make a wife for him.

Then I wondered if the tumors are 95% living, does that mean, we put our child through months of chemo for nothing! The response was that the chemo did kill some of the tumors, but the remaining tumors were resistant to the chemo.

Afternoon at the Zoo

We spent the afternoon at the zoo. Their sloth is still sick, so we walked around the cat area. Robbie had fun taking pictures of the jaguar, tiger, and lion. It was peaceful and quiet there today. Just what we needed!

Lung Doctor Updates 1/9/18

In this picture the nurse practitioner is pointing to the area of his lung that has fluid. They will watch his lung and said it is not unusual after lung surgery.

First the Good news... Robbie is cleared to travel next week to Costa Rica with few limitations. This is something we worried we wouldn’t be able to pull off and we are very grateful to everyone that helped with his Bucket List.

The lung doctor was able to get clear margins around the tumors he removed…meaning he removed all the cancer in the lung that he found. All great news! His doctor also told Robbie that he thinks of him every time he sees or hears about sloths. So sweet!

Bad news: Unlike his leg tumor that was 98% necrosis (dead), his left lung tumors were only 5% necrosis or 95% viability (living).

What I interpret from this report (which is like reading Greek) is the chemo had limited impact on the cancer. They are holding off surgery on the right lung for now. The dr said it is because the tumors are smaller and he doesn’t want to miss any when he does surgery.

We will see Dr Ratan after the trip. He will do additional testing and he is great at explaining everything. As my friend would say…”Just keep swimming”…

Hiking Together 1/8/18

Robbie and I went hiking today. We had a wonderful day together. I forget how peaceful it is when we are hiking. It has been hard on him to be inside so much lately. My head ache is much better, but still bothering me, which has slowed down our adventures.

Tomorrow he will go to the lung doctor and have a lung X-ray. We are hoping the doctor will be pleased with his progress and give us the final green light for traveling next week.