Butterfly Center 12/26/17

Robbie and I went to the Science Museum and Butterfly Center this afternoon. It was very crowded! He enjoying being there and mostly sat on the bench watching the butterflies. They kept landing on his red hat. He also received a new sloth in the mail today, which really made his day!

Awkward Family Photos 12/24/17

Here are some of our pictures that didn’t go on the holiday cards. Robbie didn’t like to sit still, so keeping him in the yearly picture was a challenge. Lynn crossed her eyes on almost all the pictures one year, which I didn’t notice until I developed the film. Robbie is having another quiet day. We are going to see my nephew and his family this evening.

I’m trying to get through the holidays, but I admit it is difficult to not let my fears take over. Praying for a miracle for our son this year, so we can take many more crazy family holiday pictures together.

Thank you for all your prayers and support. ❤

Knights and Shining Armor & Latest Incision Picture 12/21/17

I took Robbie to the special exhibit at the science museum this afternoon. They have a great display of Knights and Shining Armor. Robbie took tons of pictures. Then his back started bothering him, so we left. I had his pain medicine along, but I forgot the water bottle.

We took off all his bandages yesterday. I told him that he looks like he got into a sword fight. He also has a smaller incision on his side from the chest tube.