Friday Updates 6/30/17

Robbie’s platelets dropped again today. Everything else is holding steady. Keep praying for his numbers to start coming back up.  Lynn and her friend arrived last night with a car load of stuff for us from our house. They are going to spend the weekend.  I’m at the Houston airport nervously waiting for my flight…

Daily Blood Work Begins 6/29/17

Robbie had bloodwork today and due to low blood counts, he will need daily bloodwork. His white blood count and platlets have really dropped. He bleeds very easily.  His numbers are expected to keep dropping the next few days. The scary part is how low and what he will need until they start to rebound. We…

Fever Monitor 6/28/17

Robbie continues to be fever free. We are avoiding germs and staying in the apartment.  I bought a baby fever monitor that alerts your phone if your child has a fever. If he starts running a low fever again, we will try it out at night, so we can hopefully rest easier. I’ll let you…

6/27/17 No Fever this Morning

No one slept well last night. Robbie’s fever stayed below 100 and this morning it is normal. We will keep monitoring it. 

6/26/17 Running a Fever

Robbie is running a slight fever tonight. We will check on him in the night. We are hoping to avoid the ER. It is a sign that his blood counts are dropping. This is a few days sooner than expected, so hopefully it will drop back to normal over night.  I realize that I don’t…

Quick Zoo Visit 6/26/17

We went to the zoo to the two closest buildings to the entrance, so Robbie could see the sloth and the aquarium. We were there less than an hour and now he is resting. He had fun, but he is very weak.  My mistake was thinking we could pick up a few groceries on our…

Sunday Sleeping 6/25/17

Robbie slept most of the day again today. We did take him out for a short shopping trip, but after 20 minutes he was ready to leave and go back to sleep. His mouth is starting to bother him, so we’ve started to take his temperature, since it is a sign his blood counts are…

Birthday Cards 6/24/17

Thank you to everyone that has sent cards to Robbie. You really brighten his day.  He was asleep most of the day. 

Friday Night 6/23/17

Robbie slept almost all day today. Some of his cousins came for supper, but he had to leave his birthday party to go get a shot at MD Anderson to help with low blood counts. All the drugs have upset his stomach tonight. 

Happy Birthday, Robbie 6/23/17

Happy Birthday to Robbie!  He is 24 today. Thank you to everyone sending cards. You are really making his day! He finished the first round of chemo last night and is heavily drugged to keep from being nauseated. We won’t know until he goes through the process if his body can handle the heavy chemo…