Current Leg Options 3-9-17

We need to decide what to do for Robbie’s leg. It is very difficult to know what is best.

The Problem: He has a knee contracture in his right leg due to extensive scar tissue from his leg surgery. This makes it impossible for him to straighten his leg, so it is like walking on a much shorter leg.  This is hard on his body as his entire body shifts back and forth when he walks, which is exhausting. He is getting around well considering and is slowly building up his endurance.

Leg Options:
Option 1: Leave his leg as it is and continue working out, putting weights on his bad leg, stretching it, and wear a dynamic leg brace to put constant pressure on it.
Problem with option 1: This is what he has done this for over a year now with little progress with his knee contracture. Major progress in what he is able to do.

Option 2: Leg Surgery. This would be invasive leg surgery with a similar length scar on the underside of his leg to remove the scar tissue that is holding his leg. The surgeon is very good and we trust him.
Problems with option 2: The scar tissue is wrapped around his nerves and his major leg artery. Any of those could get cut in surgery causing more nerve damage including loosing the little feeling he has in his leg and/or causing a drop foot. There is also a risk of infecting his prosthetic leg that is inside his leg. There is a strong risk of the scar tissue coming back too. It would take intense PT for an extended time to help avoid the growth of new scar tissue. There would be a lot of pain after surgery just like his other leg surgeries only the recovery would be faster because he isn’t on chemo.

Finally, if the surgery worked, he would have no limitations and could return to basically a normal life. This is why I would even consider the surgery.

Advice: If anyone has any advice or experience in this area, we would appreciate if you would contact us. We don’t have to rush into anything.

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