Leaving Houston 11/23/16

We are heading back to Oklahoma today. We are leaving a lot less stressed then we arrived! It is hard to believe we have to go through this every three months.  We are looking forward to the holidays. We are so Thankful that Robbie continues to be in remission. 

Houston Zoo 11/22/16

We took a break from doctor appointments and spent a couple hours at the Houston Zoo. The sloths were sleeping as usual. Robbie can walk with his crutch a lot further than our last trip, but still became very tired when his leg started hurting. Overall it was a great trip. 

6 Months in Remission!

Robbie’s leg X-rays are good and his lungs are clear. Robbie continues to be in remission!!!! Dr Lin our orthopedic surgeon wants to wait another three months with PT to see if that will help straighten his leg more before surgery. Next leg surgery if needed will be major with more risks, so Dr Lin…

Hearing Tests

I took Robbie to the new location at Hearts for Hearing. He is doing well with his new hearing aids. 

Robbie’s Christmas Wish 11/14/16

I asked Robbie what he wants for Christmas. He said that all he wants is for MD Anderson to say that he is still cancer free! This is my Christmas wish too! A week from today we travel back to Houston for Robbie’s 3 month check up at MD Anderson. We are praying for good…

Heart Checkup 11/9/16

Robbie went to his heart doctor this week for his yearly checkup. He has Marfan Syndrome, so his doctor checks his aorta each year and measures the size of his aorta root and heart function. The good news is that his aorta stayed the same size. The bad news is that the strong chemo drugs…

Robbie has hearing aids again! 11/3/16

Robbie has hearing aids that he can keep!! Thank you Hearts for Hearing! Also thanks to DRS Deaf and Hard of Hearing services. We are so thankful! It has taken us since the end of July with many twists, turns, hoops, and paperwork.

A Year Ago ….The ER trips Started 11/1/16

 A year ago we were at the ER with Robbie. The start of many trips to the hospital. His blood counts kept dropping dangerously low, which was very scary. I still get emotional seeing this picture. He was too weak to walk. He stayed a few days in the hospital getting blood transfusions and platelets….