Robbie was in the sound proof room while they tested and re-tested his hearing using various methods. They have very sweet audiologists at Hearts for Hearing. They agree with our ENT that he needs hearing aids. They recommend Resound, which will work with his phone too. Robbie likes the blue ones. They should also help with the ringing in his ears. They can be programmed to play white noise to help with the ringing.
Our next step is to meet with Oklahoma Rehab in a couple weeks to see if they will help with the some of the cost and then put together a plan to buy them for him. Jim needs hearing aids too, but is waiting for Robbie first.
We are looking for a local orthopedic doctor for Robbie. Sounds simple..a large number of Dr’s in the Oklahoma City Metro. The problem I’m running into is once you mention cancer and his leg surgery, no one will take him. One Dr (that our family Dr recommended) told his secretary to tell me that he didn’t want the liability and said no one in his practice will either.
They only need to monitor the progress of Robbie’s leg, work with the PT & OT, and finally communicate with his MD Anderson Orthopedic Surgeon. This is not rocket science.
We taught Robbie how to use the Uber app to get rides today. He wasn’t excited about learning, but he got to and from PT & OT on his own today.
I have to attend a reading training all next week during the day, so he needs a way to get there and back. It is our plan to have him use Uber when I go back to work next month too.
He isn’t able to use his right leg for driving. Eventually we will hire someone or find a program to teach him how to use his left leg for driving and maybe adaptive equipment for the car. For now, using the Uber app is our best option.
Robbie tried on Resound hearing aids today at our ENT’s office. Robbie couldn’t believe how loud everything sounded. They work great! I hated to have him take them off. We are going to Hearts for Hearing on Monday.
Hearts for Hearing was recommended to us as a good place to take Robbie for hearing aids. A few days ago I made an appointment for next week.
A sweet lady from Hearts for hearing called today. They are going to try to help Robbie with part of the cost of his hearing aids. They want to help him since he lost his hearing from cancer treatment. We didn’t ask for help, so having her call was so thoughtful!
Our insurance doesn’t cover hearing aids and they cost $3000 -$6000 per hearing aid. Even part of the cost would really help us. Very kind!
Lynn and Robbie walked around downtown Edmond finding Pokemon characters and posing by statues.
Sloths are mostly deaf. After several rounds of heavy chemo, Robbie is also hard of hearing. The audiologist today confirmed what we already knew, that Robbie sustained major damage to his ears from the chemo treatments. The suspected drug is Cisplatin. He will need hearing aids, so we are looking into different options to get them for him. If anyone has any suggestions on what type of hearing aid to buy, let us know.