First Haircut since August 4/28/16

Robbie got his first haircut since August. His hair is starting to come back since he finished the multiple rounds in the fall of heavy chemo. His hair is able to grow slowly on the current chemo with some curl. He had a very sweet hairdresser today that gave us her cell number if he…

Therapy at Anderson 4/28/16

Raymond worked with Robbie again today in PT trying to stretch out his leg. His leg was better than yesterday and gained back the degrees that were lost when he hurt his foot. Yesterday the best they could do was 39 degrees and today they got his leg to 31 degrees. It causes Robbie a…

Chemo Round 9 4/24/16

Robbie and the sloths are watching anime during chemo.  Early morning at Anderson.  Robbie has started round 9 of chemo today. He has a fantastic nurse!!  For round 8, we had a lot of problems with his nurse being untrained to give chemo. She didn’t use gloves…asked me how to do his chemo…scary.  I let…

Zootopia and Ice Cream 4/23/16

Jim and I took Robbie to the movie Zootopia and out for ice-cream today.  He finally felt well enough from the last round of chemo to go out. On Sunday, he will have chemo #9. 

Broken Foot 4/21/16

Dr Lin, Robbie’s orthopedic surgeon, called last night. He said that Robbie has a hairline fracture in his foot on the leg that had surgery. Apparently, the bones in that leg are more fragile now due to lack of use. This explains all the pain he had after hurting his foot during therapy. He can…

Autism Awareness Month: Robbie’s Story 4/20/16

With Robbie’s permission, I’m posting about Autism today. I have presented to teachers about autism and I’ve taught many students on the spectrum.  I’ve talked about writing a book with Robbie, but I’m not sure anyone wants to read another autism story.  When he was younger if you told me that we would someday face…

Fever again 4/19/16

Robbie is running a fever again tonight, so we are monitoring him closely incase we need to take him to Anderson. 

Houston Flood 4/18/16

Water levels are way up on the river on Holcombe Street.  Street in front of MD Anderson this morning.  Some of the streets we passed on the way home today are still flooded.  Water going over the small bridge.  We made our way to Anderson in the rain and flooding today. The streets we went…

Running a Fever 4/16/16

Robbie has a low fever tonight. If it goes up, we will have to go to Anderson’s ER. We are praying we don’t end up there in the middle of the night.  Updated Saturday Morning: No fever this morning, but his throat is still bothering him. We will take his temp throughout the day. Anything…

New Sloths 4/15/16

Robbie received new sloths this week from our cousin Beth and from his OT at Anderson. So sweet that they thought of him. He was very tired and slept most of the day.