Museum of Natural Science 3/29/16

I took Robbie to the Museum of Natural Science today.  It is a great museum. We were able to stay a couple hours today until Robbie was tired. He had fun taking pictures.  We have today off from Anderson and hopefully tomorrow too. 

Fish 3/28/16

We are hanging out by the fish tanks while we wait for his next appointment. He got an X-ray of his heart and lungs today. 

Happy Easter 3/27/16

We enjoyed Easter with my nephew’s family today. I hope everyone had a wonderful day. We appreciate your support and kindness this year.  Robbie had bloodwork this morning and the chemo drug is finally out of his system for this round, so we can stop giving him pills every six hours. The concern is damage…

Sleeping off Chemo 3/23/16

We got to Anderson early for OT and PT, but Robbie was too tired after having chemo yesterday. We came back to our apartment so he can sleep for a couple hours and then back to Anderson for his noon blood test. Next time we will know to cancel everything for a few days after…

Done with Round 7 3/22/16

Waiting for them to disconnect his port or “deport” him as Robbie says. Jim brought his blanket and pillow at lunchtime and stayed the rest of the day with us. After he is home we have to monitor him and give him medicine around the clock. We also have to bring him everyday for the…

Round 7 3/22/16

Robbie has started chemo round 7 at MD Anderson in Houston. Dr Ratan plans to do 4 more rounds of chemo, which is also what he told us in January…so it is hard to know.   We are in a tiny room the size of a closet. They are trying out-patient this time. We will be…

Early Morning at Anderson 3/20/16

We came to Anderson early again today. Robbie has bloodwork and then they will decide when to start round 7 of chemo. The sloth is along in case he starts chemo. We are all very tired today!  Robbie is having a lot of leg pain. 11:30 Update No chemo today, his platelets are too low….

Columbus Ohio Zoo 3/17/16

Robbie relieved gifts from the Columbus, Ohio Zoo all signed by Jack Hanna to Robbie. He was very excited! His Uncle Bob and Aunt Edith wrote to the zoo and told them about Robbie. We really appreciate Jack Hanna and the zoo staff for sending him the gifts. Jack wrote a note to Robbie that…

Raymond for PT 3/17/16

Robbie got a surprise during PT today. Raymond worked with him today. Normally Raymond works in the hospital side.  Robbie joined the kids at camp for the morning. His new skill is being able to use the escalator with his walker.