Robbie and I will be at MD Anderson all day today. Two appointments down, three to go. We won’t be done until 5:00pm.
Dr Ratan wants to start chemo again on Wed. He isn’t sure how many more rounds of chemo, but his team is thinking 4 or more.
Robbie and I are trying to find a quiet spot to hang out.
Robbie and I visited a traditional Lutheran church today near Rice University. They have an outstanding choir and a very friendly congregation.
Robbie is having a good weekend. Some leg and foot pain off and on.
I dropped Jim off at 7:00AM at the Houston Hobby Airport. He has a direct flight with Southwest back to OKC. I’m jealous he is going home and my anxiety level just went up a few points.
Robbie has a lot of appointments this coming week and if he numbers go up a little more, he will have chemo.
Robbie’s blood count went up today, so he doesn’t have to have blood taken again until next Monday. Yay! His platelets and white blood count are still low, but slowly inching up.
He is having a great day. He got a gyro from a food truck and ice cream from
Baskin-Robbins. He wanted to try something different.
Done with bloodwork and waiting for Jim to pick us up. They will call this afternoon with the results.
3:00 They just called with his results and his counts went down slightly from yesterday, which was a disappointment. Praying for better results tomorrow. He has slept most of the day today.
Robbie showing off his flexibility skills. This is how he puts his shoe on his surgery leg.
Robbie is very tired hanging out at MD Anderson this morning. Getting there by 7:30 AM, made for an early morning. His platelets stayed the same today at 39,000. Normal is between 150,000 and 450,000. White blood counts dropped again. We are hoping since the platelets stayed the same that they will start going back up tomorrow.
We’d like to find a church to attend while we are in Houston. If anyone has suggestions, let us know.
It is quiet at MD Anderson on Saturday morning.
Robbie humor: The nurse said… I’m here to “draw” your blood. Robbie said…You are going to “draw” pictures of my blood? 🙂 The nurses love him. His blood counts took another jump down. I’m praying they start to swing back up. More blood tests tomorrow.
This is the entrance to our apartment complex.
Inside our apartment. Table and chairs we borrowed from a friend of Sarah’s. Her friend co-wrote a book about cancer.
Robbie had appointments at MD Anderson today. It is nice to be only 2 miles away now! He started with bloodwork, which he has had done dozens of times without problems, but today after they were done, he kept fainting. They got so excited they rushed him to the ER to get checked out. Nothing beyond low blood pressure and low blood counts, which we knew already.
Then he went to a new doctor that specializes in bone marrow problems. He didn’t find anything significant in his bone marrow biopsy and he thinks all the problems are due to the heavy chemo he has taken. They were worried about other cancers or disorders. We will follow up when he finishes treatment and they will come up with a plan of what to do.
Ruth, Nick, and Lynn took off to return to Tulsa today. It is hard to know that we will be apart for awhile. I’m sure they will travel down again. It is just not the same as being less than 2 hours away.
We just arrived at MD Anderson for Robbie to start round 5 of chemo. We are praying he doesn’t get as sick as he has in the past. They are going to try a drug that isn’t as harsh on his bone marrow since his numbers are still low.
We have some leads for housing and hopefully we will figure it out this week. Friends and family have all been helping us look. I almost cried when a sweet lady named Margaret called today, since I’ve been thinking of my mom all week and her name was Margaret. I was just thinking that I wish she was here and then Margaret called.