Got a new sloth for Robbie today. We saw sloths when we visited Costa Rica last May. He is in good spirits this morning. Jim and I passed each other in the hallway as I arrived today. Glad he can stay at night. He is working part time this week.
He had a pretty good day. He is very tired and sleeps a lot. Tonight he feels a little light headed and nauseated.
Robbie is hooked up to chemo around the clock until Friday. So far the nausea medicine is working. Other than being tired from being checked on frequently in the night, he is doing okay. They might do another echo of his heart today.
He got the sloth from Ruth at the zoo. Jim took over last night so I could go home. Lynn is home for a couple days taking turns at the hospital too.
Robbie is in the recovery room after getting a port put in his chest. He hates to have things touch him, so I hope the port doesn’t bother him too much.
He was understandably nervous today, so they gave him some Valium before surgery. They should have given Jim and I some too!
They said we can take him home around 2:00 today. He is doing well, just very tired from all the meds.
Ruth & Robbie….Watching the sea lion
My daughter Ruth talked us into coming to the Tulsa Zoo today. She is the marketing director for the zoo. We had a great day visiting with Ruth and seeing some of the zoo animals.
They let Robbie use an electric wheelchair. The zoo gets 5 stars for being very accessible. They have ramps everywhere. We also met one of the zoo staff that has been on the Ninja Warrior show.
I’m having a hard time waiting and waiting for our local doctor office to get Robbie’s treatment started. He would have started last week, if we had stayed in Houston, so I hope we didn’t make a mistake to have treatment in OKC.
We called them from MD Anderson last week and the doctors have talked with each other. Today Jim called to see what was taking so long and they said….well…we lost the chemo orders from Anderson.
I just sent them another copy, but this doesn’t make me feel very confident. The doctor is great, so I’m hoping his office staff starts moving. This just adds to our stress!
Robbie is using his new soft blanket from the staff at Centennial. He is reading and looking at pictures that my class and their Kindergarten buddies made. He smiled when he saw the gift basket and laughed at the drawings from the students.
A big thank you to the Centennial Staff.
Robbie loves the gifts you sent!
Miss you all! We love our Centennial family.
We are blessed with a strong faith, friends, family, and even strangers that have been helping us with our son. The saying that it takes a village to raise a child could not be more true.
This week, Jim’s brother spoke with Marriot and they helped us out with our stay. (Very kind managers)
Friends and family have been sending encouraging messages, and helping with so many things (even crutches), and we have many people praying.
We can’t say it enough….Thank you! We couldn’t do it without you!!
30 weeks of treatment starts next week.
Cindy and Jim
A picture of Robbie checking out the fish tanks at Anderson.
We are on our way home from Houston.
Today we met with Dr Ratan again to go over all the tests done in Houston and the treatment plan. Thankfully they didn’t find additional cancer beyond his leg. We are going to have MD Anderson direct and monitor his treatment and also do the surgery on his leg when it is time. They are going to coordinate with our local doctor, so Robbie can have chemo in OKC. We will take Robbie back to Anderson the beginning of November.
This is a view of MD Anderson from across the street at the Mays Clinic. Only one test today, so we are relaxing until this afternoon.
He will have an echo of his heart, which he has done yearly, so it should be quick.
He has some heart issues due to Marfan Syndrome, so they will be monitoring his heart closely while he is on chemo.