New Sloth 9/30/15

Got a new sloth for Robbie today. We saw sloths when we visited Costa Rica last May. He is in good spirits this morning. Jim and I passed each other in the hallway as I arrived today. Glad he can stay at night. He is working part time this week. 

Tues Evening 9/29/15

He had a pretty good day. He is very tired and sleeps a lot. Tonight he feels a little light headed and nauseated. 

Tuesday Morning 9/29/15

Robbie is hooked up to chemo around the clock until Friday. So far the nausea medicine is working. Other than being tired from being checked on frequently in the night, he is doing okay. They might do another echo of his heart today.  He got the sloth from Ruth at the zoo. Jim took over…

In the Recovery Room 9/24/15

Robbie is in the recovery room after getting a port put in his chest. He hates to have things touch him, so I hope the port doesn’t bother him too much. He was understandably nervous today, so they gave him some Valium before surgery. They should have given Jim and I some too!  They said…

Tulsa Zoo 9/23/15

Ruth & Robbie….Watching the sea lion My daughter Ruth talked us into coming to the Tulsa Zoo today. She is the marketing director for the zoo. We had a great day visiting with Ruth and seeing some of the zoo animals. They let Robbie use an electric wheelchair. The zoo gets 5 stars for being…

Waiting and Waiting 9/21/15

I’m having a hard time waiting and waiting for our local doctor office to get Robbie’s treatment started. He would have started last week, if we had stayed in Houston, so I hope we didn’t make a mistake to have treatment in OKC. We called them from MD Anderson last week and the doctors have…

Centennial Elementary 9/21/15

Robbie is using his new soft blanket from the staff at Centennial. He is reading and looking at pictures that my class and  their Kindergarten buddies made. He smiled when he saw the gift basket and laughed at the drawings from the students.  A big thank you to the Centennial Staff.  Robbie loves the gifts…

Faith, Friends, Family, and Strangers 9/18/15

We are blessed with a strong faith, friends, family, and even strangers that have been helping us with our son.  The saying that it takes a village to raise a child could not be more true. This week, Jim’s brother spoke with Marriot and they helped us out with our stay.  (Very kind managers)  Friends…

Heading Back to OKC 9/16/15

A picture of Robbie checking out the fish tanks at Anderson.  We are on our way home from Houston. Today we met with Dr Ratan again to go over all the tests done in Houston and the treatment plan. Thankfully they didn’t find additional cancer beyond his leg. We are going to have MD Anderson…

One Test Today 9/16/15

This is a view of MD Anderson from across the street at the Mays Clinic. Only one test today, so we are relaxing until this afternoon.  He will have an echo of his heart, which he has done yearly, so it should be quick.  He has some heart issues due to Marfan Syndrome, so they…