The current chemo drug is slowing the cancer down, but also causes multiple side effects. It is all the Dr has left to try, so as long as it helps and doesn’t make him too sick, he will continue.
Robbie continues to have cancer in his lungs, along with a new tiny tumor on his heart and liver. It all looks about the same as two weeks ago when he was in the ER, so his Dr thinks the new drug is helping.
Dr Ratan told him today that his cancer is terminal. He has mentioned this possibly to Jim and I, but this is the first time Robbie has heard this. It is devastating news. We are so sad. It is so frightening for him and all of us.
Robbie has beat the odds so many times. Keep praying for all of us. ❤
We left our house at 5:30AM for Robbie’s tests at Anderson. When we arrived, the line was out into the hallway and the person checking people in was painfully slow. After 45 minutes, Robbie finally got to check in. She was like the sloth in Zootopia.
After his tests, he was exhausted, but since he has been talking about the Butterfly Center, I talked him into going. My thought is that you can feel bad at home or while watching butterflies. He was too weak to use his camera and too weak to stay very long. I went to their guest services and a nice young man got a wheelchair for us and wheeled Robbie to our car in the parking garage. He also was a sweet tour guide as he walked us through part of the museum on our way out. I was mad at myself for thinking this was a good plan. He slept all the way home and looks better this afternoon.
Robbie texted me today while I was out running errands. Mom…Here is a picture for the blog. Robbie with his 3 largest sloths. Love him so much.
He continues to be very weak, but is awake more and is complaining less of his back. He is breathing heavily when he walks, which frustrates him because there is so much he would like to do.
Tomorrow morning he has scans of his chest and bloodwork. Why they scheduled him at 6:25AM, I have no idea. We thought about getting a hotel near Anderson, but decided we will just get up early. We live 45-60 minutes away from the med center.
Trip to Costa Rica last January, where we took Robbie to the Sloth Sanctuary, thanks to many people that donated so we could take him. The owner of the Sloth Sanctuary took the day off to spend with Robbie and gave our family a private tour of the sloth nursery, where they let Robbie hang out for a couple hours with the baby sloths. http://www.slothsanctuary.com
The sloth nursery
Robbie with the owner
Many… many trips to MD Anderson. The nurses and doctors all love Robbie and his many sloths. When we left the hospital last week, the nurses asked when he would be back. One bought him a new little sloth. They take excellent care of Robbie.
MD Anderson Hospital
The HoustonZoo. We are so thankful to the Houston Zoo that lets Robbie see Curly when we stop if they have time. They have turned horrible days into better days. Seeing Robbie smile is priceless. https://www.houstonzoo.org
Houston Zoo with Curly
Houston Museum of Natural Science. Robbie loves going to the large Butterfly Center at this museum and has taken many beautiful photos of the butterflies. It is also a peaceful place to go especially in the morning and just relax and watch the butterflies. He likes the gems and rocks exhibit too. He has fun taking pictures of the different kinds. In addition, we have visited many of their special exhibits. http://www.hmns.org
The Butterfly Center
The Kolache Shoppe on Richmond in Houston has the best Kolaches. Robbie loves when we stop on the way to MD Anderson on mornings that we have time. It is Robbie’s favorite breakfast. https://www.kolacheshoppe.com
Keep praying for a cure for osteosarcoma and for good test results on Monday.