Out for Supper 1/15/19

We met Robbie’s Aunt Edith and Uncle Bob for supper at Nyam Nyam Cafe tonight in Cypress. It is a small place with great food. Best crepes!

Robbie continues to take his chemo meds daily. They make him very tired. He is enjoying having his Aunt and Uncle visit.

Sloth Mug 1/12/19

Robbie received an adorable sloth mug in the mail today from a sweet friend we met attending a Marfan Syndrome conference a few years ago. This summer the conference is in Houston.

Robbie has gone 24 hours without a fever for the first time in about 2 or 3 weeks. He continues to cough off and on and is tired being back on chemo.

New Shirt 1/9/19

Robbie was given a new shirt from Lynn’s friend. “I run better than the government”…

He still has a fever today, but it isn’t as high and he feels better today. Tomorrow he starts the next round of chemo drugs. I hope this round isn’t as hard on him.

Fever and Sister Visit 1/9/19

Robbie 1994

Lynn flew in Tuesday to hangout with Robbie for a few days. He is running a fever and sleeping a lot.

It was difficult to return to teaching this week. Thankfully Lynn is here for a few days.

Thank you for all the kind messages. We are grateful for all the prayers and support. ❤

MD Anderson Updates: Terminal Cancer 1/7/19

Waiting for his appointment

The current chemo drug is slowing the cancer down, but also causes multiple side effects. It is all the Dr has left to try, so as long as it helps and doesn’t make him too sick, he will continue.

Robbie continues to have cancer in his lungs, along with a new tiny tumor on his heart and liver. It all looks about the same as two weeks ago when he was in the ER, so his Dr thinks the new drug is helping.

Dr Ratan told him today that his cancer is terminal. He has mentioned this possibly to Jim and I, but this is the first time Robbie has heard this. It is devastating news. We are so sad. It is so frightening for him and all of us.

Robbie has beat the odds so many times. Keep praying for all of us. ❤

Tests and Butterflies 1/6/19

Look…no traffic going into Houston!

Butterfly Center

We left our house at 5:30AM for Robbie’s tests at Anderson. When we arrived, the line was out into the hallway and the person checking people in was painfully slow. After 45 minutes, Robbie finally got to check in. She was like the sloth in Zootopia.

After his tests, he was exhausted, but since he has been talking about the Butterfly Center, I talked him into going. My thought is that you can feel bad at home or while watching butterflies. He was too weak to use his camera and too weak to stay very long. I went to their guest services and a nice young man got a wheelchair for us and wheeled Robbie to our car in the parking garage. He also was a sweet tour guide as he walked us through part of the museum on our way out. I was mad at myself for thinking this was a good plan. He slept all the way home and looks better this afternoon.

Pray for his strength and for good test results.

Pictures with Sloths 1/5/19

Robbie texted me today while I was out running errands. Mom…Here is a picture for the blog. Robbie with his 3 largest sloths. Love him so much.

He continues to be very weak, but is awake more and is complaining less of his back. He is breathing heavily when he walks, which frustrates him because there is so much he would like to do.

Tomorrow morning he has scans of his chest and bloodwork. Why they scheduled him at 6:25AM, I have no idea. We thought about getting a hotel near Anderson, but decided we will just get up early. We live 45-60 minutes away from the med center.

2018 Recap 1/4/19

I’m posting a 3 min clip from Robbie’s year.

Here are a few of the places in the short clip.

Trip to Costa Rica last January, where we took Robbie to the Sloth Sanctuary, thanks to many people that donated so we could take him. The owner of the Sloth Sanctuary took the day off to spend with Robbie and gave our family a private tour of the sloth nursery, where they let Robbie hang out for a couple hours with the baby sloths. http://www.slothsanctuary.com

The sloth nursery

Robbie with the owner

Many… many trips to MD Anderson. The nurses and doctors all love Robbie and his many sloths. When we left the hospital last week, the nurses asked when he would be back. One bought him a new little sloth. They take excellent care of Robbie.

MD Anderson Hospital

The HoustonZoo. We are so thankful to the Houston Zoo that lets Robbie see Curly when we stop if they have time. They have turned horrible days into better days. Seeing Robbie smile is priceless. https://www.houstonzoo.org

Houston Zoo with Curly

Houston Museum of Natural Science. Robbie loves going to the large Butterfly Center at this museum and has taken many beautiful photos of the butterflies. It is also a peaceful place to go especially in the morning and just relax and watch the butterflies. He likes the gems and rocks exhibit too. He has fun taking pictures of the different kinds. In addition, we have visited many of their special exhibits. http://www.hmns.org

The Butterfly Center

The Kolache Shoppe on Richmond in Houston has the best Kolaches. Robbie loves when we stop on the way to MD Anderson on mornings that we have time. It is Robbie’s favorite breakfast. https://www.kolacheshoppe.com

Keep praying for a cure for osteosarcoma and for good test results on Monday.